[shannonmc]

i had pain for almost 2 years before i found out what it was .. Dr. Sherry and the childerns hospital of philly told me that i had RND i did his program witch usually works for most people but only made my RND spread from my abdomial area to my wrist so now i have in in 2 spots i dont really no where to go from here .. is there any other ways to treat this other then the intence pt&ot program..? thanksss

[daniella]

Have you done any blocks,pain pumps,catheter,or scs,meds like neurontin?Or looked into these things?I am sorry I am pretty new here but what is rnd? Good luck

[shannonmc]

ive taken neurontin didnt help but rnd is just what my docter calles it there is many different names for it .. i think that rnd is the childhood version but its all the same thing

blocks and different things where would i go or who would i go to find out about getting these things .. like what type of docter would i go to..

[susieorr444]

I got 2 blocks from an anethesiologist/pain doctor. The first one lessened my pain and burning dramatically. I saw no difference in the second. My orthopedic surgeon referred me to the pain specialist. Good luck, Susie

[jenno]

Hi,
My daughter sprained her ankle and was diagnosed with RSD. In the process of treating that, she developed abdominal RSD from too many medications. She too participated in Dr. Sherry's program and like you did not find pain relief. We later discovered that hyperbaric oxygen treatments were able to stop her pain, and I would love to share her story with you and your parents if you all would like more information.
Take care and best wishes!
Jeanne

[shannonmc]

i woulds love to hear about that .. how was dr.sherrys program for her it was so hard..

[shannonmc]

i would love to here about that sounds similar to me .. how was dr sherry program for her i no it was REALLY hard ..

[jenno]

Yes, Dr. Sherry's program was very, very hard; and sadly it was not helpful in stopping my daughter's pain. Still I hesitate to degrade what they do there because I have known of others who have benefited. I am going to send you a pm with some details of my daughter's rsd journey in hopes that it might provide some helpful information.
Jeanne

[shannonmc]

i did get the message but i was wondering after dr. sherry what did you do like did you use him to find other thing or did you see someone eles and was it through chop

[daniella]

I am not aware that much of this program but I did a day program that was filled with pt/ot and therapy for pain. It was suppose to be for 6 weeks but I lasted 4 days my pain was so high. Many others benefited from it but I just could not tkae it. So anyhow they sent me to an anesteseolgist/pain doc to a put a catheter in for 6 weeks so then I could go and do extreme pt. I chose not to at thattime but maybe if you got a pain doc/anastesolgist it can give you direction.