Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-16-2008, 10:49 AM #1
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Default Haven't posted in awhile, have question about flying

I took a break from the forum for awhile. I do read off and on and see so many new ones on here and feel bad for what they are going through. RSD is something it takes awhile to get to a good place with, if there is one for some. I think eventually though with the right help, everyone can.

I finally got through two virus' but still dealing with allergies. I'm on meds but it hasn't helped. One good thing is the Mobile Park owner is cutting down 3 cottonwood trees. Apparently I'm not the only one dealing with allergies to them. Both my neighbors are and I'm sure others are. I'm also dealing with allergies to something in my bedroom, not sure on that one yet.

I've been doing better in a lot of ways. I joined Curves, but only go 3 days a week due to the pain. I take every other day off to get over some pain.

I have been really enjoying the boys. I spent last night with Susan, Travis and Dustin. It's family night for them. They rent movies and have Pizza on Tuesdays. It's a tradition so Dustin called me and asked me down. Devin is in Louisanna wiht his Dad right now. I've been swimming with the boys a few times.

Devin spent 3 days with some of the retired Broncos' learning new moves. I went down on the 3rd day and watched the parents' play against the kids and
Rick Upchurch, Stutter, and some others. It was a blast.

Anyway to the question, I am going to Ky. in Sept. That is if American Airlines doesn't go under by then. I already have my ticket. I am sending Bill's ashes down to be put with Mom and Dad when I get there.

The question. I have the VNS in me and I need to know how to deal with it. Do I make arrangements with the Airline before I get to the airport or do I wait until I get there? I got on line and tried to get answers and called and got recordings. I don't want to get up to the airport and have to fight them over not going through the security system. I have a card but is that enough? I'm thinking thatsome of the SCS people might have dealt with this issue.

Anyway, I welcome all of the new ones and do hope that everyone can soon see some more pain free days.

Ada

Last edited by dreambeliever128; 07-16-2008 at 11:15 AM.
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Old 07-17-2008, 05:12 AM #2
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I can't answer your question dear friend but I did want to leave you a hug. Enjoy your time with your family! And keep ringing AA. beats standing in that line over and over again.
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Old 07-17-2008, 08:38 AM #3
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Default Flying

I fly several times per year with my SCS. Proceed as you normally would and line up for the screening. But when you get to the first TSA screener (the one checking boarding passes and ID cards) mention that you have a medical implant and need "hand screening." At some airports, they will take you through a special line, but usually they will tell you to let them know at the metal detector.

Place your items on the belt like everyone else. Make sure your device is turned "off" as it could mess up their screening equipment. If you use a cane, that needs to go through the x-ray as well, but they have ones to borrow if you have to have it to walk. Tell the TSA person again that you need a hand screen and can't walk through the detector, and they will direct you to wait at a special place. Another TSA screener will get you for screening. Explain what you have (I generally just tell them "It's like a pacemeker, but for my spinal cord.") and where it is located, particularly if it is sensitive, like mine. Further explain that the hand-held metal detector cannot be used. They will do a gentle pat-down. They use male screeners for men and female screeners for women.

I have never had to produce any medical evidence in the five years I have had mine. Almost all of the TSA screeners are kind, patient, and do not make you feel like a terrorist.

While you are going through this process, you should ask a traveling companion to retrieve your carry-on items. If you are flying alone, let the screener know. They will let you keep an eye on your things while they pass through the x-ray and might even retrieve them for you.

It is not to bad. The first time seems intimidating, but it is usually quick and stress free. Hope you enjoy your trip!

Mike
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Old 07-17-2008, 04:58 PM #4
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Hi,

In my experience, the airlines let someone (family) take me through security to the departure gate in a wheelchair. Try calling them again & ask for the procedure for a disabled person.

I hope you have a really good trip.

Linmarie
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Old 07-18-2008, 09:02 AM #5
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Default Thanks Alffe, Lin and Mike,

Mike, you have that flying down pat. I was happy to see such good info to give me an ideal of what to do and what they will do. I don't want to get there and find out it's draining to deal with them. Thanks again for the help. I hope you are feeling better since summer has gotten here.

Lin and Alffe, as aways thanks girls, you two are the best. I am looking forward to making this trip. I am hoping for not so hot weather by the time I go.

Also, I am excited about going to see this movie Mama Mia. Never have been excited about a movie before. Going Monday with Dustin. He will watch the one with Heath Ledger while I watch Mama Mia. Good movies out this summer.

Ada
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