Hey everyone - I hope you're all having a low pain day!!
Just thought i'd give you a quick update on how the PT program is going. The PT is going ok but boy do they work you hard lol!!
The PT's focus a lot on strengthening my muscles - I have to wear 1-2lb weights on my legs and my arms. I am now managing to walk short distances for the first time in 12 months so I am really happy!! I still have really bad pain (the pain is about an 8 on the pain scale, although it will increase whilst doing PT or walking), hypersenstivity, dystonia, rsd, swelling, colour changes etc etc but i'm able to walk so i'm happier than I was!! I go home on Friday (yay!) but the PT's want me to come back for a further 2 weeks from the 8th September to try and focus more on the RSD, Dystonia and Hypermobility. Once I am back home I will have to go for weekly Physical Therapy at my local hospital and I will be given exercises to do daily to try and strengthen my muscles.
The PT's want me to go and see the Podiatrist tomorrow to see if they can suggest anything to stop my foot from bending out so much, I will also be going to see a Psychologist to talk through my pain and how I am coping etc.
I'll keep you all updated when i can
Take care
Alison

Hi Ali!!

Thank you for checking in and letting us know how you are doing.

It's wonderful to hear that you are able to walk around a little. I am so happy for you!!!

Take care and check in when you can.
Keeping everything crossed and prayers going up that you continue on the path of healing, lower pain levels and mobility!!


Abbie

Hi Ali!!! So good to here from you! This is wonderful news about you walking...way to go!!!! Take care and keep us updated. God Bless you sweetie!!!

Hi Ali
It is so good to see your update and that you are walking

hoping the pain goes down and that the podiatrist can help too.

praying it just keeps getting better for you

Cheri

Thanks for the GREAT news Ali

peace

GnP

Keep up that wonderful positive attitude, Ali. Will be keeping you in my thoughts and prayers for your PT to continue to help you improve. Your'e a fighter and your spirit shows through on your post. Sending hugs...

Thanks for the update, kiddo! It sounds like you're really getting a thorough workout. Keep up the good work and let us know when you get home.

It is great to hear from you. Happy to hear you are walking. Here is to you. Looking foward to seeing you back.

Darlene

I'm so pleased you are walking abit Ali!! sounds like all the pain was worth it to have improved to that degree!! how far can you walk? must be scary standing up and walking again. Are you doing it with crutches or without? does your leg still kick out? I'm so pleased you are doing better... keep working with the physio and keep positive

love

rosie xxxx

Hi Frogga,
Thanks for the well wishes - I really appreciate them. I have just finished the 3 weeks stay in hospital but the physio's want me to go back into hospital for a further 2 weeks from the 8th September to focus more on the Dystonia and RSD. The physio's also said that it may be an idea for me to come back into hospital after Christmas if I am still having problems. The pain is still about an 8 and a half on the pain scale (though it increases when I do PT) but the Physio's said that it may take a while to go down, so I guess it's just a case of waiting and seeing.
I can walk short distances at the moment, about 200 yards at the moment. I tried walking with my mum to a small shopping centre that isn't too far away from the hospital on Tuesday but think I overdid it too much as the pain got worse and my leg started spasming. The physio's said that at the moment I should take things really steadily as my muscles get fatigued really easily. The Physio's had me walking without crutches as they said that it can take a lot of hard work to get off crutches once you are on them.
I have also being given some exercises to do that I need to do on a daily basis to try and build strength in my muscles and get rid of the RSD and hypersenstivity. I am also have weekly Physio at my local hospital.
Sue Maillard (the PT that runs the program) is also going to be discussing my case in an International Conference about chronic pain.
I hope you're ok.
Love
Alison