[Desi]

Where are you? how are thing's going for you? Please post as soon as ya read this, so I know your ok!!
Thank you, Pookie!! Love, Desi

[screwballpookie]

Hey Desi,
Thank you so much for caring. it has been a long week for me. I have had a lot of appointments for my daughter and my self this week. Sorry it took so long to get back on. My pain doc was not much help yesterday. So I am depressed about that. i wish somedays that none of this ever happened. The pain get so bad sometimes and I just don't know how to deal with it. l have been extremely tired this week and have been taking a few short naps off and on. Thank you so much for caring about me and making sure I was ok. I am still alive just depressed with everything right now. Thanks again.

Sincerely,
Pookie

[Desi]

Hey, pookie... Thank you soooooooooo much for getting back, was gonna send out a "Search Party" for ya, hun! I am so sorry that your pain doc was not much help at all for you!! I too wish that sometimes this never happened to ANY ONE OF US, POOKIE, but it is and all we can hope for is a good and tried and true "Cure"!! I know it's sad, but Pookie, we all have to make the best out of this hellish disease that we can. Try and get as much needed rest as you can! That is the best therapy too for this disease!! Hang in there and I did p m you and gave you my e. mail address. write when you can. Of course I care, and Hang on for dear life, Pookie.. this beast does not care how we are, feel, care blah.. blah.. blah... So, it's up to us and the medical advice we can get and meds, HBOT(I am gonna try this next, I think)?? ~Much love, Desi

[screwballpookie]

Hi Desi,
How are you doing? The pain just seems to keep getting worse, but I do have some good news. I took my daughter to her first couseling meeting and met DAvid for the first time and we both absolutely love him. My daughter wants to go back and see him. That made me happy as well as her opening up more than I expected her to for the first time. It was a great day and he also gives her homework all the time to which is great. The homework is not writing homework. This week she has to give her cell phone to me before she goes to bed and so far so good.
I tried to do some housework today but it was so hard. It hurt so bad and I was so tired after doing what little bit I did. All I did was go to the garden and pick 2 zuchini and a few radishes, feed my animals twice today,pick the kitchen and living room up, clean the cat litter, and do 2 loads of laundry and hang them on the line. That is not very much but I am so tired. Why do I get so tired after doing just that little bit? Oh and i forgot I had to fix supper. I feel so wiped out like all I want to do is sleep. I don't understand because that is not very much to do. I use to do a lot more than that before this rsd. Do you get wiped out like that?

Sincerely yours,
Pookie

[Desi]

Hi Pookie!
I was feeling better a week ago, then comes the RSD beast rearing it's ugly head again. Girl, you did more than me and I do believe you said you have full body RSD?? Gosh, I have not seen my downstairs in 4 .. make that 5 days tomorrow! All I want to do is sleep as of late. I am depressed, don't feel like eating. (My son dropped by and brought both me and Bill(My hubby a meal) My daughter is staying at his home with his wife and son until Saturday, so.. it's like, even a major "chore" to go and get me a shower. I do all that, then wanna go back into hibernation. I hate this disease for all it's worth. I am supposed to be going to a wedding next saturday, so I am going to just go and force myself to go! Who know's?? maybe I'll get drunk and hang on the chandelier?? hahaha "What A Hoot that would be, eh, Pookie"?? LOL no, I seriously hate drinking. I think I drank so much in my tweenties, that I hate it anymore. I do so want to go, so I most likely will. I do hope all is well with you, my friend! ~Love, Desi

[screwballpookie]

Hey Desi,
Things are not going as well as planned for me. No right now all I have is in my left hand up my arm into my shoulder and neck which that is my dominant side. Yesterday I went to Wal-mart with my daughter and by the time we got towards the end of our shopping I could hardly walk. Just out of no where my right foot started to hurt like hell and then my left foot followed in suit. i was using the cart for support until we got done. My daughter was a great help, but why all of a sudden did my feet start to hurt so bad? By the time I got home I was hurting all over. What happened? I don't understand. And today I still hurt like crazy.What is happening to me? Take care and will talk to ya soon.

Sincerely,
Tracy

[Desi]

Sorry Pookie, that your hurting!! Girl, why didn't you use their scooters?? I know that they have many, many there!! I think Bill should get one here at home by himself, but, I am scared that he may become too dependent on "The scooter" and try not to use his legs, feet altogether when he's well. Same thing with the oxygen. His doc refused to send him home with any, as he was getting Oxygen all the time, I guess docs hate when you use that 24/7? Hope you get to feeling better!~Love, Desi

[screwballpookie]

Hey there Desi,
Sorry it took so long to get back to you but my computer is messed up and I am right now using my mother in laws computer. I didn't use one of the scooters because I didn't think my feet would hurt so bad.Sometimes I just think i have to be tough even if I am not. the pain is so unbearable because I have been so stressed out this week. First we thought we might lose our house but I talked to the lenders and everything is going to be ok I think. We also had to replace the well water pump this week it quit working. We were with out water for 2 days and without the internet for 2 days. We think lightning may have gotten it. I had to get my daughter registered for school and take her to the counselor. And today I had an interview with social security for the 4th time and I really thing it went good this time. I am keeping my fingers and toes crossed for the best. We need some good news for once. We will see. I have been taking naps when I can, but it has been short off and on this week.The pain is just so unbearable somedays. I know deal with it. I have to be the strong one this time no matter what happens. Not easy but I try.Take care and will talk to ya later.

Sincerely yours,
Tracy