I would like to thank all of you that have written to me on here it means alot.
Sadly things just worsen as each minute passes now my doctors in my area have given up on me and tell me just to wait till i see Dr. S. Well heres the problem with that, they know and i know i will not make it till than...Literally.
For all of you all i can say is keep fighting for most of you either Swartzman or Sherry will fix you. And be grateful for the family and friends support you have.
As long as you have them the puppeteer (RSD) can't fully control you. Its only once you have lost it all that it starts to take control of everything. We must all believe that one day they will find a cure for all of us. But until than show the world and this puppeteer what your made of. I believe each one of you are stronger than you know. Your dealing with something just about all other humans could not even imagine or even deal with. You deserve respect and support.

Lordwood, somehow we do make it to the next moment. when i think of some of the pain i have delt with i am astonished i have made it. there i no way to describe it. I fell asleep in my wheel chair last week for 4 or 5 hours. I slouched to the right. the pain in my right arm from pressing on the metal arm of the wheel chair was shocking- way beyond a 10 it was a 100. How I llifted myself through that pain I will never know- I still have a large ball in my right arm and can barly touch the spot- thats called something in rsd- hyperglasia or something. no one but one of us will ever understand the depths of pain we go to. Do hang in there some how we do make it. I have anyway and I am astonded each day that I have. A new med has helped me Opana er, have you tried it? I take 40mg am and pm and of course many breakthrough meds through the day. but it is the best base line med I have been on. hang in there. CZ

Here's an unusually informative Wikipedia article on the underlying drug - Oxymorphone http://en.wikipedia.org/wiki/Opana

Thanks Michael I hadnt seen this, but this has without question been the most successful baseline med I have ever take. It lowered my daily pain level from an 8-9 to a 5. My quality of llife daily has improved immensly although I still have breakthrugh problems and require oxycodone 3 times a day. But I have a rather severe case of rsd. My biggest loss was being allowed to drive. I can not and do not drive on these meds. Very upseting but well worth the daily pain reduction. I do hope anyone suffering as Lordwood is will try this. When it was finally givie to me I was in crisis last december, they tried everything first, fentynal etc. Nothing was touching my pain. Then within minutes of taking my first opana, a slight exaggeration, I had my first end to a 6 week flare of excutiating pain.Thanks again for posting this link. CZ