Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 07-25-2008, 05:47 PM #1
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Teeth I was approved for ssd first time know attorney

Hi every one,
I was approved for SSD on Friday my back check was in bank on tuesday.
I didnt thing i was going to be approved from all the storys i have read, all over the internate. I didnot have a attorney i didnt even have to see a judge. This was also my first try. I just wanted give people hope That dont give up. RSD is started to get more attention now and more and more people are getting it.
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Old 07-27-2008, 02:18 AM #2
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Wow Fire that is great news!! "Congratulation"!! I am still waiting for my attorney and from SSI And you got it on your first try?? Very unusual, but very good that you got it!! We all should get this on our first try, as the pain, and there is no cure for it!! Great going, Fire!! yea for you!!~Love, Desi
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Old 07-31-2008, 02:38 PM #3
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Smile Approved for SSD

Hi, I am new to the forum but just had to put in my two cents. (Hope it will be more than two cents if I get approved too!) I live in Michigan and I have heard it is next to impossible to get dissability. We have a friend who lost a lung because of his job, nope, no way! When he finally had a heart attack he got it. Nice huh? He isn`t very old either. Anyway I found out on one of the RSD websites, Michigan had passed some kind of legislation or bill to begin to educate, doctors, have pamphlets and material available to let people who work in the health community, know and learn about this disease. They are trying to pass it in other states too. About time! I feel anyone with this horrible, painful disease should get it no questions asked! Geez, the medications alone make me too goofy to even scoop ice cream! Well, God bless and good luck.
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Old 07-31-2008, 03:49 PM #4
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Quote:
Originally Posted by franny View Post
hi, I Am New To The Forum But Just Had To Put In My Two Cents. (hope It Will Be More Than Two Cents If I Get Approved Too!) I Live In Michigan And I Have Heard It Is Next To Impossible To Get Dissability. We Have A Friend Who Lost A Lung Because Of His Job, Nope, No Way! When He Finally Had A Heart Attack He Got It. Nice Huh? He Isn`t Very Old Either. Anyway I Found Out On One Of The Rsd Websites, Michigan Had Passed Some Kind Of Legislation Or Bill To Begin To Educate, Doctors, Have Pamphlets And Material Available To Let People Who Work In The Health Community, Know And Learn About This Disease. They Are Trying To Pass It In Other States Too. About Time! I Feel Anyone With This Horrible, Painful Disease Should Get It No Questions Asked! Geez, The Medications Alone Make Me Too Goofy To Even Scoop Ice Cream! Well, God Bless And Good Luck.

I Also Live In Michigan And I Was Denied Withing A Month For Disablity And I Have Rsd In My Whole Lower Body!! Its Complete Bs Pardon The Language. I Am Setting Up An Appeal 2 Appear In Front Of A Judge So I Can Show Them My Damn Pain!! It Is Next 2 Impossible I Have A Friend That Tried 4 Times And Still Nothing. On Top Of Everything They Said It Wood Take 4 Months To Decide And I Was Okay With Taht Cuz Then They Wiood Hopefully Do A Thorough Job But No In A Month I Was Denied!! I Wish U The Very Best Of Luck Possible
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Old 07-31-2008, 05:20 PM #5
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Wow, I am impressed! I don't think I have RSD but I do know I am qualified for disability and have been denied 3 times now and was told by Allsupp (my rep.) that it could be another 18-24 months! There was a lady that was a friend of my friend that had just been denied, she was in last stages of terminal cancer......I am beginning to think it is the luck of the draw
Congrats to you anyway
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Under care of PM 3 years. Diabetic, lost over 100 lbs was 300+, now 174 lbs. Normal labs, diet controlled!
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Old 07-31-2008, 05:33 PM #6
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I don't usually post on this forum, because I have MS, not RSD. But, I saw your thread, and it gave me hope. I am currently in the process of applying for disability. Submitted my online application the first week of June, and had a phone interview June 13.

I am also not using an attorney. I have the support of my doctors. I am hopeful, but cautious. Don't want to get my hopes up too high, because I know that most people are denied on first application, and on appeal, and it ends up going to court. Will get an attorney if it goes that far.

Congratulations!

~ Faith
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Old 07-31-2008, 05:42 PM #7
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I just got the phone call that they will send me to a doc to see my abilities. I am hopingthis is a good thing, and that they are giving it thought.
HUGE CONGRATS!!!!!
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I have the support of a loving husband, and two wonderful children. They make me get out of bed everyday, and fight the pain of RSD
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Old 07-31-2008, 07:24 PM #8
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When I was denied on my first try, I was like .. "what the??" They even had me see "THEIR" doc's who didn't know one damn thing about RSD!!! So, when I was denied the first time, (They said the decision wasn't from their doc's??") .. Ya, right!! I called an attorney and he had those that didn't send(My doc's) in my medical records to them, send them in!! So, they wrote a little while ago and said that "They are now considering the matter of this beast RSD. They didn't say "BEAST", I did. LOL Anyway, I think that was rotton of them not to let that poor lady have SSI due to the fact that she was in her final stages of cancer. That made me sick to read this!! ~Love, Desi
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Old 07-31-2008, 11:35 PM #9
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Heart SSI Denied

Quote:
Originally Posted by Stacie View Post
I Also Live In Michigan And I Was Denied Withing A Month For Disablity And I Have Rsd In My Whole Lower Body!! Its Complete Bs Pardon The Language. I Am Setting Up An Appeal 2 Appear In Front Of A Judge So I Can Show Them My Damn Pain!! It Is Next 2 Impossible I Have A Friend That Tried 4 Times And Still Nothing. On Top Of Everything They Said It Wood Take 4 Months To Decide And I Was Okay With Taht Cuz Then They Wiood Hopefully Do A Thorough Job But No In A Month I Was Denied!! I Wish U The Very Best Of Luck Possible
Stacie,
This state is a darned, I want to say.. well you know! joke! Some people are getting it for NO good reason! I have heard from others it takes two times before you get it. Ridiculous! I applied online and when my hubby and I went in Wednesday, this week, I had receipts from Dr. visits that said RSD as a diagnosis in BIG letters on them. Orthopedic Dr. and two Neurologists. I had copies of all of my tests and papers showing I had been to physical therapy. I had receipts from my counselling (head therapy) for my depression too. I had 23 copies of record release forms for them to get records from all the doctors I have seen. Most of the doctors didn`t know shi_ about RSD! I knew more than they did just from what I got from the great websites on the internet! I gave them the receipts from 8 of the 14 stellate ganglian blocks I had and a paper explaining what they are. I also gave them a copy of the current prescriptions I am taking. I am now at a pain management center at a hospital where I am currently getting my prescriptions and also getting my nerve blocks. There are two very nice doctors treating me there but I don`t think they have really seen many, (if any) RSD patients. The one doctor has done a pretty good job at the blocks but when he suggested the stimulator he was honest and said he never implanted one for the arm. I didn`t plan to do it anyway. They will have to send for those records. Sorry to go on for so long! I will keep you posted and please do the same for me here at this thread? Last resort would be the lawers that advertise on TV that specialize in getting dissability if you have been denied. Don`t give up yet! Let me know how much information you presented when you applied, did you do it online and how long ago? How long did you wait until you knew they denied you? Did you see one of THEIR doctors? How long have you been out of work? I heard if it has been over at least a year that makes your chances better. I am sorry but they really are idiots when they don`t even know ANYTHING about this disease!! Again I have to say. Come on, with the meds we take, what the hell are we supposed to do for work? I know, this newest pill I am taking has made me soooo bitchy maybe I could scoop ice cream with my left hand and THROW it at people when they walk by! Ohhhhhhh that was really bad wasn`t it? I am so sorry but Stacie honey, I do feel your frustration! Hang in, DON`T GIVE UP and keep me posted!
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Old 08-01-2008, 08:25 AM #10
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Quote:
Originally Posted by franny View Post
stacie,
This State Is A Darned, I Want To Say.. Well You Know! Joke! Some People Are Getting It For No Good Reason! I Have Heard From Others It Takes Two Times Before You Get It. Ridiculous! I Applied Online And When My Hubby And I Went In Wednesday, This Week, I Had Receipts From Dr. Visits That Said Rsd As A Diagnosis In Big Letters On Them. Orthopedic Dr. And Two Neurologists. I Had Copies Of All Of My Tests And Papers Showing I Had Been To Physical Therapy. I Had Receipts From My Counselling (head Therapy) For My Depression Too. I Had 23 Copies Of Record Release Forms For Them To Get Records From All The Doctors I Have Seen. Most Of The Doctors Didn`t Know Shi_ About Rsd! I Knew More Than They Did Just From What I Got From The Great Websites On The Internet! I Gave Them The Receipts From 8 Of The 14 Stellate Ganglian Blocks I Had And A Paper Explaining What They Are. I Also Gave Them A Copy Of The Current Prescriptions I Am Taking. I Am Now At A Pain Management Center At A Hospital Where I Am Currently Getting My Prescriptions And Also Getting My Nerve Blocks. There Are Two Very Nice Doctors Treating Me There But I Don`t Think They Have Really Seen Many, (if Any) Rsd Patients. The One Doctor Has Done A Pretty Good Job At The Blocks But When He Suggested The Stimulator He Was Honest And Said He Never Implanted One For The Arm. I Didn`t Plan To Do It Anyway. They Will Have To Send For Those Records. Sorry To Go On For So Long! I Will Keep You Posted And Please Do The Same For Me Here At This Thread? Last Resort Would Be The Lawers That Advertise On Tv That Specialize In Getting Dissability If You Have Been Denied. Don`t Give Up Yet! Let Me Know How Much Information You Presented When You Applied, Did You Do It Online And How Long Ago? How Long Did You Wait Until You Knew They Denied You? Did You See One Of Their Doctors? How Long Have You Been Out Of Work? I Heard If It Has Been Over At Least A Year That Makes Your Chances Better. I Am Sorry But They Really Are Idiots When They Don`t Even Know Anything About This Disease!! Again I Have To Say. Come On, With The Meds We Take, What The Hell Are We Supposed To Do For Work? I Know, This Newest Pill I Am Taking Has Made Me Soooo Bitchy Maybe I Could Scoop Ice Cream With My Left Hand And Throw It At People When They Walk By! Ohhhhhhh That Was Really Bad Wasn`t It? I Am So Sorry But Stacie Honey, I Do Feel Your Frustration! Hang In, Don`t Give Up And Keep Me Posted!


I Couldnt Have Said It Better Myself!!!! I Presented A Lot Of Information Just Like U Did And I Didnt Do It Online I Did It At My Local Office And They Only Took A Month 2 Deny Me!! The Bniggest ***** Is That They Didnt Even Let Me See One Of Their Drs So I Didnt Have A Cnahce In Hell 2 Begin With And I Have Been Out Of Work Since November Of 2006. I Believe That Answers All Your Questions If You Have Any More Let Me Kno And Ill B Happy 2 Answer. And This State Is Beyond Damned And I Wish I Could Just Get Up And Move!! I Wish U The Very Best Of Luck!!

Do You Have Yahoo Or Aol Instant Messanger?? WE CANT ACTUALLY HAVE A CONVERSATION THAT WAY OR U SHOULD TRY WWW.RSDCHAT.ORG I AM ON THERE A WHOLE LOT!!!!
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Last edited by Stacie; 08-01-2008 at 09:00 AM.
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