Hello everyone, im new here and want to say hi. i have RSD in my L/hand, wrist, arm and shoulder but it has spread across and down and up in my neck and the back of my head. my L/arm and head are the worst right now. i was hurt at work on 2/06

Welcome, nice to meet you but sorry it has to be because of rsd. I've had it for 5 1/2 yrs now, in all limbs,hands,feet,hips and shoulders. It spread fast for me, 11 months. I got hurt at work too, slammed my knee into a broken handle on the line. I was a cook. Are you still dealing with wc? I settled a yr and a half after my accident. So glad to have gotten out from under them. I found a great doc at least and get good care.

If there's anything you want to ask don't be afraid. We've probably felt it too.

Hugs,

Karen

Welcome, I sorry to hear about your injury.I've had RSD 12 years following surgery. I hope you have a good Dr. and pain management. I don't know how work comp. works, but as yours has spread and may continue to, the consequences of your injury, may be medically expensive and also in many other ways, depending on if you can work. I know a lot of us can no longer work, and that's a huge impact on our family. Mine has spread full body. Do you have bad headaches? I sure do as I also have neck and back of head involvement. Not to discourage you, but many of us have internal organ involvement, My Dr. said it's because RSD is an autotomic disorder. I have learned so much here and encouraged by others that truly understand what you are going through. It's hard for others, even though they care and love us to know what we go through, and maybe why we don't feel social like we used to be. Hope you remember this site and keep asking questions. Loretta

hi galena, thanks ,nice to meet you yes i am still under w/c care it *****i think i have a good dr too. it is so hard sometimes to just stand up ty.


hi loretta, good to meet you yes i get headaches all the time mine is the same and i think i have internal problems but have to go to my dr not w/c dr thank you


stan

I'm a wc case as well. My case adjuster has been really good. I was still working was just force to turn in my resignation due to the engine in mine and husbands only car blew up. But when I was working my job was changing store managers so they hired a nurse to go with me to my appt. she has been doing everything to help me. The only thing she didn't know about RSD is that it does spread. She tried to tell me it doesn't but I told her I did my research and it does. I'm waiting for an appt to be made for me. Its been a long wait, I saw a general practioner last month asked him if there was anything he could prescribe for the pain he said he couldn't prescribe anything strong enuf. So I have been w/o meds since June. I guess I never did tell my story huh. On March 2, 2008 I was cleaning the soda machine taking the nozzles off, one was stuck and when I pulled harder to get it off my right wrist came down and hit the ice tray at the bottom. I hope you have better luck with doctors than most ppl have. After the doctor I saw after the accident happened couldn't figure out why I was in pain 3 weeks later, he referred me to a bone specialist. The bone specialist diagnosed me with RSD. Then just before my appt in June with him I had a bruise show up on my hand, that I couldn't explain, he said it wasn't cuz of my injury because my RSD should be gone. This was only after 2 weeks of OT, um... NO. So I called my wc case adjuster and the nurse told them I flat out refused to go back to him and they have been working with me since to get the right treatment. Hopefully will get something soon this pain and lack of sleep is killing me. But due to the stress, my whole right arm is in pain along with my right leg. Mostly in my ankle but my whole leg feels like it is on fire and when I walk to long I get shock waves of pain from my toes to my butt. Anyway hope everything goes well for you.