Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 06-15-2011, 10:36 AM #1
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catra121 catra121 is offline
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catra121 catra121 is offline
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Join Date: Jan 2010
Location: Illinois
Posts: 1,785
10 yr Member
Default They finally found something but...

now I am not really sure what to do about it. After months of problems and tests that showed practically nothing I now have a test result that may explain at least some of the symptoms I have been experiencing.

In May I had an EGD which showed a lot of inflammation in my esophagus and stomach. Since the vomitting, dizziness, and nausea was not getting better with me on the Nexium, they ordered a HIDA scan to test how well my gall bladder is functioning. Well...apparently it's not really functioning hardly at all. I got a call from my doctor last night (not the gastro doc because he is out of town until Thursday...but my primary care doc) and she gave me the name of a surgeon to see to discuss removing my gall bladder.

Obviously, this has me a little concerned. I think that a non functioning gall bladder could explain a lot of my symptoms (dizziness, nausea, vomitting, bloated stomach, abdominal pain, headaches) but I think that there is stuff that it wouldn't explain like the burning pain, the redness of my skin, sensitivity to touch, etc. I have suspect those things are caused by a spead of the CRPS after the block. So...would removing the gall bladder really be a good idea?

I guess that depends on what is actually wrong with it. The ultrasound of my gall bladder was normal (only thing they saw was a mass on my liver). If my gall bladder is infected...it's gotta go...I get that. If it's damaged (either from an infection that may or may not be in my system any longer or from the LSB procedure)...then I'm not sure. If it's gall stones...then maybe there's an option besides removing that would be worth a try such as changing my diet or something.

So I think before I see a surgeon, I should see the gastro doc to discuss what is causing the problems in my gall bladder and the results of the HIDA scan in depth. Does that make sense? I just don't want to jump into something and make matters worse for myself by just jumping into a procedure without knowing all the information and weighing all the benefits/risks of the thing. Been there...done that...want to be extra careful now.

Does anyone have any experience with something like this? Good, bad, am I worrying over nothing?

Thanks for any help or advice. I'm happy to finally have an idea of at least part of what may be wrong with me...but I really want to get more information on exactly what is wrong before I make any decisions.
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