Hello,
I have Palatal myoclonus. I would like to chat with anyone who has it. I gave up on drugs. I'm not going to have surgery, so that leaves Botox injections. I've found someone who has given this in the tensor veli palatini muscle to relieve vibrations of palate, and therefore the ear clicking. I had one injection, which didn't work, but now they know a bit more where to put it, so I'm going to have another. Kind of working up the nerve to do it.

Diana

I get a pop-pop-popping in my ears all the time, something betwen popping and clicking it drives me nuts.. I always assumed I have water or air pressure in my ears.. goes on most all day, my docs always "tisked" over it and ignored it or looked in my ears and said they look fine, also my left jaw locks and clicks.. gets very painful when that side of my face flares or I eat a steak.

I just tend to ignore it all and chalk it up to more inevitable ills since.. unless.. is there something that can be done for it?
Silence would be good.

be well,
Sandra

Sandra, Have you talked to anyone about TMJ? Some of your symptoms sound a bit like that.

Hi Diana,
I was diagnosed with palatal myoclonus 12yrs ago. I hav constant clicking in both ears, which can be heard by other people. I hav been on rivitrol, epilim and tegretol medication, none of which worked.
In the last few months the clicking has been painfull and therefore I am now looking inot more treatment options. Im considering the botox injections but am a little worried about the side affects. Is it true your speech changes??
Also do you know anything about the drug Trihexphenidyl?
Renee

Renee,
Sorry I just noticed someone responded to my comment! Haven't been to this site for awhile, sorry. Yes I tried Trihexiphenidyl. It was awful. It didn't help. I tried Botox six times. It did affect my speech and swallowing for a few weeks but it didn't help my PM. The symptoms indicate that they've Botoxed the right place. Sometimes it works for PM and sometimes it doesn't. I worked up to 15 units and the ENT wouldn't try more. You've had it for quite sometime. I'm beginning to think mine is caused by a spinal problem. Degenerative Disk Disease. I also have lots of crunches in my neck that are quite loud and started the same time as PM. It was also the same time I had a rather aggressive spinal manipulation by a chiropractor.

Diana