Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 08-29-2008, 04:56 PM #11
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default TY

Thanks for the new info- I will highlight that section!!

Deb
debbiehub is offline   Reply With QuoteReply With Quote

advertisement
Old 08-30-2008, 12:50 PM #12
Millerprof Millerprof is offline
Member
 
Join Date: Jul 2008
Posts: 101
15 yr Member
Millerprof Millerprof is offline
Member
 
Join Date: Jul 2008
Posts: 101
15 yr Member
Default

One suggestion would be to tie in how this would benefit them financially (how much your treatment is costing them right now and in the future, also tying in cost for mental health services as related to this condition if it applies for you), and how HBOT can actually save them money.

I am sorry you have had to go through so much, and that it has spread for you. I am currently going through HBOT--I have had about 23 treatments now and plan to do 40. I feel like it is making a difference (although it took awhile to get results--you need to be patient). The other woman I am getting treatments with was pain free after about 15 sessions. I am excited to get back in the chamber on Tuesday. If this turns out to be the key treatment for me, I'll also be consulting with insurance to cover maintenance sessions. I had med pay from my accident that covered most of the 40 sessions I'm doing now. Best of luck to you!!
Millerprof is offline   Reply With QuoteReply With Quote
Old 08-30-2008, 03:50 PM #13
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
debbiehub debbiehub is offline
Member
 
Join Date: Oct 2006
Location: Long Island NY
Posts: 765
15 yr Member
Default TY

Thanks for the ideas- I will try and incorporate that into the letter. I think you said you experienced increased pain during your sessions? Thats what happened to me the first time so I stopped (not realizing that it is normal for that to happen) Please keep us up on how it is going!

Thanks

Deb
debbiehub is offline   Reply With QuoteReply With Quote
Old 08-31-2008, 10:57 PM #14
Millerprof Millerprof is offline
Member
 
Join Date: Jul 2008
Posts: 101
15 yr Member
Millerprof Millerprof is offline
Member
 
Join Date: Jul 2008
Posts: 101
15 yr Member
Default

Yes--I had increased pain for awhile. Now I am finally experiencing the benefits (after 23 dives). After a year of having RSD my foot and leg finally feel close to "normal." Today I went to a store with my husband and I had to ask him if the air conditioning was on. Usually my RSD leg would chill to the bone and I didn't even notice it. I am amazed and I hope the benefits continue.

Another thing you could consider incorporating into the letter would be how this disorder affects you on a daily basis. What does it really "feel" like to have this dreadful condition. You could also ask a family member to write a letter for you from their perspective on how this has impacted you and perhaps your family.
Millerprof is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Deserate now -anyone know about hBOT Sydney Reflex Sympathetic Dystrophy (RSD and CRPS) 20 03-10-2009 06:31 PM
My HBOT DianaA Reflex Sympathetic Dystrophy (RSD and CRPS) 16 04-03-2008 01:44 PM
Thinking of Trying HBOT ali12 Reflex Sympathetic Dystrophy (RSD and CRPS) 10 12-06-2007 08:01 AM
HBOT experience survivor New Member Introductions 4 10-09-2007 01:41 AM
To Vicc, regarding HBOT InHisHands Reflex Sympathetic Dystrophy (RSD and CRPS) 7 02-27-2007 08:30 PM


All times are GMT -5. The time now is 05:46 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.