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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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08-29-2008, 04:56 PM | #11 | ||
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Thanks for the new info- I will highlight that section!!
Deb |
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08-30-2008, 12:50 PM | #12 | ||
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One suggestion would be to tie in how this would benefit them financially (how much your treatment is costing them right now and in the future, also tying in cost for mental health services as related to this condition if it applies for you), and how HBOT can actually save them money.
I am sorry you have had to go through so much, and that it has spread for you. I am currently going through HBOT--I have had about 23 treatments now and plan to do 40. I feel like it is making a difference (although it took awhile to get results--you need to be patient). The other woman I am getting treatments with was pain free after about 15 sessions. I am excited to get back in the chamber on Tuesday. If this turns out to be the key treatment for me, I'll also be consulting with insurance to cover maintenance sessions. I had med pay from my accident that covered most of the 40 sessions I'm doing now. Best of luck to you!! |
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08-30-2008, 03:50 PM | #13 | ||
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Thanks for the ideas- I will try and incorporate that into the letter. I think you said you experienced increased pain during your sessions? Thats what happened to me the first time so I stopped (not realizing that it is normal for that to happen) Please keep us up on how it is going!
Thanks Deb |
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08-31-2008, 10:57 PM | #14 | ||
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Yes--I had increased pain for awhile. Now I am finally experiencing the benefits (after 23 dives). After a year of having RSD my foot and leg finally feel close to "normal." Today I went to a store with my husband and I had to ask him if the air conditioning was on. Usually my RSD leg would chill to the bone and I didn't even notice it. I am amazed and I hope the benefits continue.
Another thing you could consider incorporating into the letter would be how this disorder affects you on a daily basis. What does it really "feel" like to have this dreadful condition. You could also ask a family member to write a letter for you from their perspective on how this has impacted you and perhaps your family. |
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