Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 09-15-2008, 03:50 PM #3
screwballpookie screwballpookie is offline
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Join Date: Jul 2007
Posts: 207
15 yr Member
screwballpookie screwballpookie is offline
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Join Date: Jul 2007
Posts: 207
15 yr Member
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I have yet been able to run my scs since I was reprogrammed. I thought if I let the Skelaxin get into my system for a while I would try the scs again. I did that and it went directly into muscle spasms again and it was so far out of control that my hand kept bending down and trying to go towards my armpit. I could not get control of it again so once again i had to use my right hand (the non dominant hand) and find the unit inside my abdomin and try and get it shut off as quick as possible. That once again was not very easy. Ever since I have not used my scs and have been in a lot of pain. It seems like the rsd has moved from my left fingers clear up my arm, into my left shoulder front and back part of my left neck and now over to my right shoulder front to top. I feel like I am going crazy in the head am I? One good thing that happened is that I got to see my new psych doc Aug. 28 and she switched my meds. Instead of taking Clonazapam I am now taking 2mgs of Xanax XR in the morning and Ambien CR at night along with all my other meds. The Xanax XR has seemed to settle my anxiety down better. I don't get mad as easy and blow up like I use to. That is a great feeling for me because I use to blow up and be very moody while on the Clonazapam. The Ambien seems to be helping me sleep a little better which is also good. That doesn't mean that I still don't hurt. I hurt really bad almost everyday. Why have I not called my pain doc? Because last time I did they gave me the Slelaxin and said that would be all they could do for me so I am afraid I will get the same response if I call them. What would you do if you were in my shoes? It is very hard to function with this much pain. My sister did give me one good idea. anyways I thought it was, since my daughter and husband don't care to read anything about rsd I am going to make a scrapbook about rsd. Do you think that is a good idea or not? Please respond and let me know if you have any suggestions on what I should do with all this. Thank you to all.

Sincerely,
Screwballpookie
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