[screwballpookie]

Hey everyone just I would drop you all a line to let you know I am still alive and kicking. The rsd is not getting any better. A couple of weeks ago I had seen Carol a medtronics rep and she reprogrammed my scs and I thought the way she had done it was fine because when I left the office I was feeling ok. She spread the stimulation out to get my entire shoulder and more of my arm as well as turn the amplitude up from 1.10 to 1.60. That night I went into muscle spasms like never before. I had no control over my left arm. It was like my whole arm was completely stiff and my hand would ball up and try to point down to the bottom of my arm. It was very painful and I had to hurry and try to get the thing shut off. I thought well i will wait a bit and try it againn and the same thing happened. I thought when I go to bed it might be better then so I tried it at bedtime and no sooner than I laid down i went to even more severe spasms so I hurried up and tried to get it shut off as soon as possible. I slept without it on and did not get much sleep due to pain. The next morning I turned it on and I immediately went into spasms and I tried to turn the amplitude down and it did no good. I called Carol right away and told her she said she could not do anymore for me to call Dr. Panozzo my pain doc and see what he could do. So I did and I talked to Kathy she talked to the doc and they said all they could do was try me on Slelaxin at 800mgs 3 times a day. I have yet to turn my scs on because I am scared of what might happen again. Has the Skelaxin helped me any? No not really as far as the pain goes but as far as the spasms I am not sure cuz I have not tried the scs yet because of fear. If that don't work I don't know what i am going to do but deal with the pain no matter how bad it gets. Even though I have not been diagnosed anyway I think I haven't I think the rsd has taken over my entire left arm and hand because I have so much pain all the way from my hand to my shoulder and it is front and back of my whole hand,arm and shoulder and a little bit in the neck. For now I just learn to live with it cuz I don't think I have much of a choice. If any of you have any suggestions please feel free to let me know what you would do in my situation. Thanks for listening to me rattle on about nothing but I at least wanted to let you all know that I am alive. Hugs to all of you and you all take care.


Sincerely,
Screwballpookie