Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 09-05-2008, 08:07 PM #3
Feather Feather is offline
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Join Date: Sep 2008
Posts: 6
15 yr Member
Feather Feather is offline
Junior Member
 
Join Date: Sep 2008
Posts: 6
15 yr Member
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Feather....I haven't posted in over a year but when I saw your post I had to respond. Our stories are so similar. I fell on ice about 3 years ago and broke my ankle, suffered a third degree sprain and tore a tendon. The bone healed, the sprain resolved but the torn tendon remains. Like you, I've been told by 3 ortho docs that they could not touch the torn tendon unless the RSD resolved. I've done extensive research on the subject and it seems that what the orthos are telling me is accurate. They also told me I had only 2 years to have the tendon fixed otherwise they couldn't do it. It's been 3 years now so I've lost my window of opportunity but I hope you have better success. Have you had any nerve blocks yet? I had 2 in the beginning of this and while they didn't make the rsd resolve, I do believe they slowed down its spread. Like many here I've tried different meds but none have dulled the pain enough to be able to walk. What has helped me the most with the pain is a leg brace also known as an AFO. I use this along with a cane...without it I can not walk because of the pain. I would look into the nerve blocks. Most pain clinics do them. In the meantime if you are having trouble walking your ortho doc could give you a walking boot or send you to be measured for an AFO (ankle foot orthodic) Where do you live?
I hope this helps a little...at least it's a place to start. Please let me know how you make out.....Jeannie
Hi Jeannie. As for the nerve blocks I have had three Sympethiact Nerve Blocks in the time from the end of May to the begining of July this year. They helped with improve the tempetaure and dull or slow the pain for a while. I found that they helped because for a while there the air was burning my skin. I use crutches to walk mainly, sometimes I will try and walk with out it since I have been told that if you don't use it could lose the abilty to.
I am really not able to walk or sit for more than about an hour because of the swelling increases the pain. The problem is when I do try to walk my ankle has something pop in it and then it swells for days and bruises.

I am so glad you replied it helps to have someone who understands.

Feather
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