Hi everyone,

I just wanted to keep you all updated and let you know that I am half way through my second intense physical therapy program. The program lasts 2 weeks this time (it was 3 weeks last time).

Things aren't going as well as we expected this time, I still have a LOT of pain and my foot wont go into a normal position, in fact the PT's said that my foot is more rotated than it was the first time I was on the program. I have Dystonia as well as RSD which means that my left leg (the one with RSD) is locked and rotated out to the side in eversion. My ankle has been like this since I sprained my ankle 18 months ago. I saw the leading Physical Therapist today and she also admitted that things aren't going as well as she expected. She said that she wanted to do more one-to-one work with me but she can't as she is getting ready to leave to a conference on Friday about chronic pain conditions. She is going to discuss my case in front of 12,000 doctors and health professionals in San Fransisco (that is pretty scary!!!). The PT's have also said that I will need to go back into hospital in January for a further 2-3 weeks intense Physical Therapy.

I was just wondering whether anyone else with RSD AND Dystonia have been on an intense Physical Therapy program like this and also how did they respond? I was told by my Doctors and PT's that there is no guarentee that the PT will work as RSD, Dystonia and Myoclonus are extremely difficult to treat.

Any help/advice is much appreaciated!!

Thanks,
Alison