Deb,
So glad to hear this! All the best!!!Good luck and keep in touch.
Diana

Thanks for all the good wishes. My doctor wrote a letter of medical necessity and I was approved. The last time I did it (2005) I felt my RSD get worse. Now I have learned that many people get worse before they get better so I am going to try and hang in there...Also last time I was going twice a day- this time I am going to go slower- once a day maybe 4 days a week instead of 5...

I think I am starting next monday

Deb

What depth will you be going at?

Deb,
Congrats and best wishes for lots of success! My daughter, Sarah, has found total relief with hobt, and I so hope that you will also. I think it is very wise that you will not be doing 2 treatments in a day this time around. Sarah tried that a couple of times, but it proved to be way too much for her. You will be in my thoughts and prayers.
Jeanne

Thanks for your wishes- I am glad to hear you daughter has had relief! How long did she go for and does she still go on occasion?

Deb

Hi Deb,
Sarah was pain free after 22 treatments at 2.4 ATA but continued on with the recommended 40 treatment protocol. What we found was that her pain would return 6 to 8 weeks after treatments. She would then return for boost treatments, with 3 stopping the pain each time. We had to travel 5 hours from home and were paying for them out of pocket, so we began to look at our options. A doctor out in Washington state invited us to come stay with her to see if her mild home chamber would address Sarah's pain, which thankfully it did. We ended up purchasing one for our home ... a good economical decision, not to mention the convenience factor. Sarah has had 2 pain flares in the past year for which we decided to return to the clinic for boost treatments. Her home chamber is great for maintenance, but she does respond more quickly with the higher pressure. If I can possibly answer any other question, please let me know. Again, I wish you the very, very best!!
Jeanne

Thats such great news for your daughter! Just 2 quick questions- is her RSD in one area or all over, did she ever experience increased pain during the tx?

Thanks
Debbie

Hi Debbie,
Sarah has had RSD in various areas of her body. What happens is that she develops amplified pain following and injury or infection. She received the diagnosis of RSD following an ankle sprain or we may have never known what was up with her. Within 24 hours, it started turning horrible colors and it became apparent that foot was not going to touch the floor until something was done. She has had severe pain that would not go away in her throat, face, and behind her ear (each separate episodes)... all following infections. She also had intense, constant abdominal pain that was brought on by all the medications she was given for her ankle.

In answer to your question about increased pain with hbot, I really don't recall that happening. I do know that she was very fatigued with the high pressure treatments, with the clinic eventually cutting them down to 2.0 from 2.4 for that reason. Her home chamber is at 1.4 and she handles them very well.

Hope this helps. Have a nice weekend.
Jeanne

Hi everone, I have a couple questions that I hope anyone can answer for me please. Do any of you who have had this therapy recommed it and what has it done for you? Like in percentages or numbers what level has your pain dropped? And if you already have an SCS can you do HBOT therapy? Thank you in advamce for any information you can give me. I truly appreciate it.
hugs,
Denny

Denny- Everyone responds differently to HBOT. If you go to RSDhope.org and click on "Pain is a four letter word" you will see Keith''s info and experience with HBOT- There is a lot of information there.

Debbie