I just want to say good bye. Sorry if I have crossed the line with anyone on this board. I have only tried to be helpful with information and share things that I think would be helpful. I had stopped posting on the board about the scs because I always felt I got a negitive response when ever I did respond, no problem. I really don't feel like I'm wanted here and that is not a problem. I wish everyone well and as always I will continue to pray for all of you that someday we shall find some relief with this monster called RSD. Jewells

Oh Jewells...I'm so sorry to see you go, won't you give us another chance? We're a new board, haven't quite found our feet yet, but we *are* trying. ...well, of course, you do whatever you need to, but remember we're here for you if you need us.

take care, all the best.

I hope you stay too - sent a little "Hello" PM your way also.

I'm just getting home and you're leaving, no way, girl.

I don't know what is happening that you want to leave and I will say I have felt that way before but there is such wonderful supporters on this forum that they just make you want to stay. This last time I left was due to me, I just could not get on here anymore due to depression, I even had my internet service shut off for this past year, I think I posted maybe twice at Susan's house. I missed everyone.

I still have your valentine's card on my bedroom wall, and the Christmas card you made me. You have such great talent.

I sure hope you hang around and I get to talk to you here and read your post. Whatever you feel is going on, take it with a grain of salt, and tell yourself that it will pass. It will.

Love,
Ada

Hey Jewells, Im still new at this board...But, it has been the best thing that has happened to me in the last coiuple of months!!! The advice and support the kind ppl on here have given to me, has helped me in sooooo many ways!! Also, has given me a reason to keep my chin up and smile!!!

I dont believe I know you, but I would like too...Please dont go...No one should have to go...Give the board and ppl on here another chance, like someone else has mentioned, I dont know who said what, or what could have happened to make you think that you are not wanted on here!!

Communicating on a message board is much different than communicating on the phone or in real life when you can hear the other person's voice. Sometimes things can be taken the wrong way or misinterupted, nothing is ever intentional!!

Believe me, I know this first hand...For example, there was a member on here about a wk ago, that made a post...I had read it...taken it the wrong way, and totally blew it way out of proportion!!! I felt like the person was slashing out at new RSD'rs and that was not it at all by any means!!! I so misinterupted what was said, and when I went back and reread the post, I was like OMG I am so wrong here...I made an apploogy and all was good...No hard feelings, moved on, and chin up!!

Thats the way everyone is one here, all are open minded ppl, who are so very caring in so many ways...No one is judgemental, I promise! There has been alot of friendships that have been made off of this board...Very family like!!!

It is your choice wether you want to leave or not...I just ask you, to please think about it, and reconsider...We want you here I promise!!!

Take care sweetie, and best of luck!!

Always,
--Heidi

Jewells,
Sweetie...are you Ok?

I went back and looked through some of the last threads you posted on...and I don't see what you are talking about? Maybe there is something going on "off forum" or something....but??? I am at a total loss?

So..I will stick to what I see here and what I feel. Ok?

First...I really hope that you are Ok, and that this isn't depression sneaking up on you making you feel badly about things that other wise wouldn't make you feel that way. If that makes sense? Second....I really hope that you reconsider leaving. If there IS something going on off forum....then put that person (or persons) on "ignore" and you don't have to hear another word from them again. You won't see any posts from them, and you won't get any PM's or emails through the forum from them. None at all. Not while they are on ignore. If it is something else...then I don't know what.

You brought up SCS here in your post? You have had good experiences with the SCS. That is something that folks need to know about then they come here and ask questions about it. I think that part of the problem here might be that you feel kinda sorta out numbered by all the folks (myself included) that have not ben as fortunate as you and wound up having less than pleasant or beneficial experiences with the SCS. Am I at least a little bit right there?

The thing is, is that statistically, as more time goes on, it is just seeming that this is how it is working out with SCS patients. But, it means that it makes it all the MORE IMPORTANT for you to put your voice in for the people that have been presented with the SCS as an option and are needing to get info about other patients experiences with it. Otherwise, all that they will hear is mainly BAD stuff....and that wouldn't be right, either. That wouldn't be right, because there IS that percentage out there that the SCS is JUST RIGHT for, and that will be the miracle thing that helps them as much as it has helped you. Without your voice here to tell them that there is that possibility, to give them ALL of the info, and ALL of the sides of the story.....they cannot possibly hope to make as informed a decision as they would be able to if you were here, posting and helping by adding the benefit of your experience.

I myself don't feel the need to post about my SCS experience all the time anymore. That is because I have the misfortune to be in the group of folks that it didn't work for....and I really, really wish that it was otherwise. I also always wonder if it needed to work out that way, because I KNOW that my old pain doc had a lot to do with the outcome of my SCS experience. He implanted the wrong unit in me...and stapled me shut. Not a big thing usually...unless you have a metal allergy and are allergic to the surgical steel, as I am. GRRRRR. I was doomed from the very start, you see..so, in lots of ways, I feel that MY experience isn't "normal" or one that would be beneficial for most folks to hear about....because of extenuating circumstances that most other people wouldn't have to deal with. However, if there ever was a person on here that had a metal allergy and was considering the SCS...I would have lots to tell them (like YES, it is possible to get one! To contact the company, they can do lots of things to help. And to do everything within your power to MAKE SURE that your doc isn't a DumbA## that puts the WRONG unit in there and messes everything up! GRRR! LOL).

Also...I feel that sometimes, there is a little bit of "over kill" going on with the "SCS is BAD" stories. I do understand that folks want to tell their story, and they want to try to warn others to try to save them from having the same experience that they have had....but sometimes all of them start to run together. So, I DO understand where you might be coming from, being at most times the ONLY voice saying "Wait...this can be a GOOD thing! It has helped me! Listen to what I am saying, too, Please?" and might feel ...well...over run and overwhelmed.

Am I right?

Like I said...that just makes it all the more important for you to tell your story! I don't know if I missed something some where, but I can tell you, that if you decide to stay, or decide to come back after taking a "Break" or whatever...and I EVER see anyone treating you badly just for staying "The SCS has been a good thing for me", because they have had a bad experience with it themselves...they most certainly will feel the ruff side of my tongue! I don't like that kind of crap...and as everyone already knows...when I do post, I have lots to say, and that kind of thing will get me riled up and I will...well....pretty much have lots to say the entire time that I am telling that person off, and telling them exactly where to go and how to get there!

And..I don't think that I am the only one, either.

So...will you please reconsider?

If you have something else going on, and you are feeling badly and overwhelmed...Sweetie..We are HERE! All you need to do is just say "Help! I need a shoulder" Or a life preserver, or whatever...and you got one! That is what we are here for, and what we do best. So, please...don't just go away with hurt feelings, and make a lot of other folks feel all confused about something that they don't understand at all....come back, and talk to us and let us know what is going on, and if you are ok, and what we can do to help you feel better. Ok?

We are here...just don't forget that, whatever you do.

(((Hugs)))
Jose

Hi Julie,

I'm sorry because I know what a kind person and valuable resource you are.
It is the other people who lose out - not you. You only lose out of the warm feeling you get when you have been such a great support to others.
You'll miss that for awhile because that is how you are.

I'm sorry I have never jumped on and said how HAPPY I was to see you or say I missed not seeing you around like some do for others. It's true, I do miss you when you are not here and look for your postings.

But I know exactly why you are leaving & what you mean AND I have to say I agree, because I experience the same thing.
Isn't it strange people don't notice it?

You are an intelligent & talented person and I, like Ada have your cards kept in sight in my bedroom and in my heart too.
I've have never before seen cards like yours. You must know that.

I'll stay in touch. I sure hope more people respond here to say good bye and tell you that you'll be missed.
Love you, Hope

You sit your little buttocks right down Missy. Your not going any where. Thats a ORDER! We have no idea where this stems from nor do we care. We love you and care for you a great deal. You have been a part of this family for a very long time.

If you have offered someone support or advice about the SCS and they took it the wrong way than that is too bad for them. We cannot hope to please everyone all the time. Like I always say treat the forums like AA. Take what you need and leave the rest for others.

Maybe just take a breather if need be. But don't you dare leave us. PLEASE! You have been a siginificant part of my healing just like everyone else has been for me. For you to leave would leave me very sad.

Chin Up!! Love You!! xoxo

Mark

Jewels,

I have seen you on the boards for awhile.. i think i even remember you from brain talk 1.. and when i found BT2, you were over here and i was really happy that i knew people that were on here.. i wished that i found it earlier, because i found BT2 after 1 reopened and everyone was saying that they were all over here...

Please dont leave or leave with hurt feelings.. Im not sure why and went back to read any recent posts about SCS and didnt find much ?? I don twant for you to relive any of the negitive that was said, but i just want to say that we need to hear stories of what we all have been through.. good or bad and yes there seems to be more bad outcomes with the SCS , but if you have a good out come, make it be heard!!! I do post sometimes on those posts but only to tell my story, thats all we all can do. Please dont let this be the reason why.. we need you and your support!!

You have been with us all and we know you!! I know that im not the only one, but i look forward to reading your posts.. im 4 yrs into this and know that I can always come here to get support and know that everyone here knows exactly what and how i feel!!

Please let us know if you will give us a second chance!! or if we (or I ) can keep in touch with you!! I again will miss you and hope that you dont leave , but if you have to , I will understand and you dont have to say another word! I konw how things can go on boards and left one of my old ones before because of the mods. but thats me.

Keep in touch if you want to!! I can PM you if you want my email addy.

Amber

Jewels!!! You cant leave!!!

Let the ones that dont like your advice or what you say leave.
We go along ways back and I thought we were great friends that couldnt be seperated by some dumb words. I dont know who it was that caused you to want to go, but I know for sure they dont know you very well, or any of us for that matter.

Im sorry if it was because I havent been around to post, or a few of us havent been posting as much, or what. When I read this post it gave me this aweful sinking feeling in the pit of my stomach. I want you to know that I will sorely miss you, and hope that the RSD isnt causing you more distress than you can handle.

I hope you stick with us
love ya much!!
Allen