Some sufferers don't experience pain according to some of the information I've seen.

I can keep my pain levels low most of the time but it's at a high price; not doing much. Over the years it's made me afraid to do much of anything and still the pain comes unpredictably. I've found many triggers and just avoid them. They change over time so it's constant adjustment. My pain isn't so much a burning pain as a very ugly sort of pressure like my hand's in a hot vise. Over the years the pain and panic attacks can seem more similar. It's ironic this disease should affect me since I was always extremely active and physical and never paid pain a moments notice. But this pain is different; it can't be ignored. I've learned to distract myself from it but this is at a high price as well. My concentration and math skills have suffered enormously. It can be very difficult to maintain an even keel.

thanks for all your kind responses!. im still not convinced that i have crps - even the cold type doesnt really seem to fit with my symptoms (whilst i understand that not everyone has the same things going on).

I am waiting to for this dr to contact me so i can really ask him what symptoms of mine he feels are crps - i just feel like i fit more of a tos diagnosis but obviously the dr's dont really care much for my opinion!

i dont like the cold as it makes my symptoms worse or triggers them,(like most of you and almost every tos sufferer!). i have muscle wastage in hand and collarbone on the right (atrophy is symptom of both tos and crps!) i have changes in colour and temp (again a symptom of both!) posture is a big thing for me too and this doesnt seem to be so much of an issue with crps - but is a big factor in tos......

so im really at a loss - i lean towards tos more because i dont have any sensitivity to air/touch etc, and i cannot identify the hot burning or cold burning pain........thanks again for your response - i will keep uupdated with my tediously long journey!

Tracey
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