This has been on my mind for a very long time now (probably for over a year and a half) and I just need to let it all out otherwise I am going to burst as I am so angry and upset.

My grandparents are being really horrible to me because of my RSD, I haven't heard anything from them for a very long time now. My nanan came round to our house on Saturday to borrow something but NEVER asked how I was, how I went on in London etc and never came to see me, they just came, got what they wanted and left. This really upset me and hurt me. It breaks my heart because I was always so close to them, saw them daily etc and now I hardly see them at all, It can go months without them getting in touch. I just don't know what to do, half of me wants to go round and tell them exacly how I feel and the other half of me just wants to leave things and let them get in touch. I know that the stress isn't helping me what so ever, I am sick of spending day's crying because of how they are treating me. Me and my mom and dad have tried everything to get them to understand what RSD is including giving them information on the condition, asking them to come to doctor's appointments etc but they wont. My nanan and grandad have only been to hospital once with me the whole time I have had RSD and the time they did go to hospital with me was before I was diagnosed with RSD when I went to ER and my nanan told the Doctor's to just chop my leg off - that really upset me and left me feeling really embarrased.

People tell me that it is because they don't like seeing me the way I am but it isn't because my cousion was diagnosed with cancer just after I was diagnosed with RSD and they were really understanding towards her. Even though I couldn't walk, my mom and me were still having to take my nanan and grandad to hospital to see her!!

I have written them a letter expressing all of the emotions I feel but I am not sure whether to give it to them as my grandad is one of those that can take things the wrong way if he wanted. One of my really good RSD friends who is also a PT also wrote a letter to them very kindly. All I want is for them to understand, come and see me and tell me that everything will be alright. I don't want attention!

Thank you all for listening and sorry for rambling I am just so upset.

Take care,
Alison