Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-20-2008, 04:45 AM #1
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Hi,

I have been reading on this site for a while and was following a girl who was just starting HBOT treatments. Her name is Debhub, I believe, she has not posted in a couple of week? I sure hope she is feeling ok has anyone heard?


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Old 10-20-2008, 12:56 PM #2
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Gaddycakes,
I have talked to Debbie but it has been about a week. Sh was doing her with a few concerns. I hope she was able to work them out. I too am concerned as to how she is doing. I also am diving in my chamber currently, so 1 1/2 hours in the am and 1 1/2 hours in the pm takes a bite out of the day. Since I don't have the drive time because mine is a home chamber, I'm sure Debbie's days are pretty filled up. I'll try to give her a ring tonight and get her to drop a post or let me know so I can pass the word on. We all wish her the best, this time. I hope you are well. All the best, Diana
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Old 10-21-2008, 07:41 AM #3
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Hi Gabbycakes,

I haven't heard anything from Debbie yet - I have been thinking of her also!! I really hope she is OK and that the HBO is helping her!! I have been looking into the HBO for myself has it sounds like a safe treatment so would love to hear how she is doing.

Debbie - if you see this, I hope you are doing OK and that the HBO is helping, you have been in my thoughts!! Please keep us updated when you can!!

Love,
Alison
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Old 10-21-2008, 09:01 PM #4
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Default Its me Debbie

Hi all- thanks for your thoughts- my new is very neutral unfortunately. I think today was about dive number 14 and so far no significant changes. I am going four times a week and today we started going a little deeper at 1.7atu...hope that makes a difference.

My RSD has since spread into my back and that is very annoying. I dont think it has anything to do with the txs because it started before the HBOT. I will keep you all posted- hopefully with some good news soon!

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Old 10-21-2008, 09:26 PM #5
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Hi Deb!

I sure hope this starts workin for ya. I have to change doctors again, but want to try and get a doc to let me give a go at it.

The last vascular doc I seen was tellin me my world was turned upside down with RSD because of ischemia, and he thinks that this would help me out. Wont reverse the damage, but might help to slow things down a bit.

Lately I have been having dreams with pain in them, and wake up hurtin somethin fearce.
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Old 10-27-2008, 01:14 AM #6
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Default Spread to your back

Quote:
Originally Posted by allentgamer View Post
Hi Deb!

I sure hope this starts workin for ya. I have to change doctors again, but want to try and get a doc to let me give a go at it.

The last vascular doc I seen was tellin me my world was turned upside down with RSD because of ischemia, and he thinks that this would help me out. Wont reverse the damage, but might help to slow things down a bit.

Lately I have been having dreams with pain in them, and wake up hurtin somethin fearce.
Dear Debbie, I am sorry so to read the rsd has spread in to your back, you know I have had so so much trouble with my spine so I know how you must be suffering. I hope the dives at 1.7 will help you and I know with Diana helping you - you have the right guidance. Good luck to you Deb, you are in my thoughts and prayers, CZ
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Old 10-27-2008, 01:18 AM #7
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Default Allen I wrote Deb but also wanted to address your pain dreams

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Originally Posted by allentgamer View Post
Hi Deb!

I sure hope this starts workin for ya. I have to change doctors again, but want to try and get a doc to let me give a go at it.

The last vascular doc I seen was tellin me my world was turned upside down with RSD because of ischemia, and he thinks that this would help me out. Wont reverse the damage, but might help to slow things down a bit.

Lately I have been having dreams with pain in them, and wake up hurtin somethin fearce.
Allen, so sorry to hear you are having the terrible pain dreeams. they are the most terrifying things. Look up sleep paralysis and see if that describes them for you ok? would you let me know? I had them for over a year and a half. I always thought they were due to the ketamine infusions and coma- they were fierce. I hope they end for you soon. Also could you tell me somthing about ischemia and what the doctor said about that? thanks so mcuh, CZ
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