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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
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11-07-2006, 07:55 PM | #1 | ||
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Lisa
I am with you on this one. I have had chronic back pain, almost full body myofacial pain, with what has been diagnosed as fibromyalgia for 30 years, and 20 of those arthritis due to old injuries (even though I am not quite 50). I used to get worse with the approaching storms. It was nothing like it is now with the RSD. It is WAY worse now. Weather Underground has always been more accurate for me than any other weather site. A home barometer is not expensive, but won't predict ahead. But, like Debby said, you learn to watch the weather coming at you for the big "L" low pressures. When the barometer goes low is the only time I really cannot quite stand the pain. It really becomes unbearable then. I head to bed with blankets, my cats, and books or tv or what ever I can to try to keep my mind off it till the pressure stabilizes or goes up again. Here in Ohio, it is up and down, up and down.... ugh. hugs! J |
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11-08-2006, 08:48 AM | #2 | |||
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Quote:
Have any of you gauged it so well that you can say to yourself, "When the barometer gets below this number, I may as well stay in bed" ? Sorry for all the (probably very silly) questions. I'm just trying to figure out how all of you have used this "tool" to live your life and plan maybe your activities or house cleaning or whatever. LOL! Hugs LisaM |
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11-08-2006, 09:44 AM | #3 | |||
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Magnate
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My Dr. tells Bill and I that all of the time. When I'm hurting, the barometric pressure is changing and when Bill's breathing is worse he tells Bill the same thing. Bill starts complaining about his breathing when it is changing and my RSD gets really bad.
I haven't followed it though to see to compare it though. It's changing now and Bill's having trouble breathing this morning. Do you use Lidoderm patches? I keep them on my shoulders when I'm hurting and they help some but I will say when I'm in a full flare up nothing does the job. If you read back on the old forum though, I would say you'd see many conversations about that. I just mentioned it in my post about Paula Abdul before I saw this post. Debby's right I think it affects any illness. My friend has gout and she goes on about how much more she hurts. Ada |
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11-08-2006, 09:57 AM | #4 | |||
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Hi Ada...yes, I use the lidoderm patches. It's hard to wrap them around each and every finger though I cant get into the old forums. Something is all weird with my password so I can't even sign in Oh well...I was given a "time out" just before the board went down anyway for defending my friends against someone who was calling them "addicts" cuz of the meds they were taking. And truth me todl, I'd do it again Perhaps they just don't want me back LOL!
I hope you are doing much better....Try that site i posted and follow it maybe??? There's a 10 day forecast for your zip code. Seems if it's on target, I should just let them know NOW that I won't be at work on Friday. Sigh... Hugs LisaM |
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11-08-2006, 10:12 AM | #5 | |||
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There is no magic number. It is just whenever it starts to fall. Once it levels off I feel better. There are also times when it starts to go up that I will hurt also. Usually when it rises quickly is when that happens. Basically any change up or down, BUT when it goes down is when I feel pain more acutely. Down is worse.
I truly am a walking Barometer. I feel it coming even before the Barometer registers it. DebbyV |
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