NeuroTalk Support Groups - RSD Dxed in 1968

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - RSD Dxed in 1968 (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/57556-rsd-dxed-1968-a.html)

Quote:

Originally Posted by rsdno (Post 845147)

Thank You for your kind words I got sick and barely came back much til 2011 I read your kind words but I only let people know I have had RSD since '68 so they know there is hope and it isnt terminal with me .
My feeling is the pain I had the last 44 years doesnt matter ,the pain I'm sharing with you gabbycakes and all others with rsd only matters in the present ,this moment is when we all feel the rSD pain and the other ways it hurts like in our loved ones thinking we are fakers or just weak a DOCTOR AFTER i WOULDNT get the scs or pump said "It probably burned out anyway" when i didnt wAnt hIS maChinEry (i have triEd it before juSt not for me)
i HOPe yOu cAn foRGIVE Me FOR WAITING SO LOnG TO GET BACK TO YOU gABBYCAKES apologies '
RSDNO

Not a problem. I hope you are feeling well.

Gabbycakes

Quote:

Originally Posted by rsdno (Post 845147)

rsdno, my wife has had RSD for 10 years now. We are finding that most doctors seem not to deal with her especially when she refuses to have any and every kind of invasive procedure imposed on her. The most invasive treatments she's had has been ketamine and lidocaine infusions. She feels that the more invasive treatments will only cause wider spread of her condition over time. There is merit to this line of thinking I believe but the docs sure make it extremely difficult.

Quote:

Originally Posted by rsdno (Post 845147)

We all understand sometimes one is not up to posting. How are you doing now?
I can really relate too to the doctors pushing certain treatments. Also the impact the pain condition has on every level from our physical,family,friends,our mental and theirs etc etc.

Quote:

Originally Posted by Jimking (Post 845251)

After trying every torture and strange drug and pumps in side me SCS too ,I have had RSD 44 Years Dxed soon and I just want the meds I need (I make sure I never give or sell any Meds )too get me by ,The SGBs the Epidurals its like the Doctors prefer we do ourselves in then to give us what our biodies say works ,I am lucky tohave such a good Doctor for myself no more invasive procedures but that is just for me I dont want to be an influence unless I can be sure I'm a positive one
Gentle Hug rsdno