Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 10-30-2008, 05:12 PM #11
Iffynah Iffynah is offline
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Iffynah Iffynah is offline
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Join Date: May 2008
Location: Nebraska
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Yep ur right my left shoulder is acting up on me now as well too. Horrible pain in it that shoots down my left arm. I am finally getting some more range back in my right arm but not a whole lot. The nurse that workmans comp hired had to hand my case over to the nurse above her and I have been in contact with her today. She got my PT set up for me because things just kept happening for my hubby that I couldn't get it done myself. I am meeting her in person on Nov 4th so she can get a grip as to what is going on. She also told me that when she is at my next doctors appointment with me she will lay it down on the doctor for not listening to me on being allergic to anti inflammitories and prescription steriods. Anyway, I'm going to try and figure a way out to put a heating pad on my neck/back. Still cannot lay on my back since shots overly sensitive.
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Old 11-03-2008, 01:52 AM #12
loretta loretta is offline
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loretta loretta is offline
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Hi Iffynah,
I had the shooting pain too. stabbing knife like and electrical shocks shoot thru me and raise head off the pillow. The only thing that stopped the shocks, stabs, etc were anti-seizure meds. I was on neurotin 3200 mg. That's an extremely high dosage, but the only way the shocks, stabbing pains would stop. Doc, started low and had to keep gradually going up. After about 3 years or more, I switched to Lyrica, same type of drug, newer on the market, maybe 2 years or so. I like it better, take 300 mg. works better for pain, was able to reduce vicodin, and less tired and snowed feeling. Both , for me, were weight gainers. Others have said the same. I've started moving more, and have lost 10 lbs. Only 40 more to go, but can and will do it.
I like the heating pad too. I also use soft gloves at night or while outside. The softie socks I like to in the winter.
The only thing that helped me get range of motion back was PT Both shoulders are good now but keep at it and stretch. Swimming is the best, after it improves some. Some therapy places have hot tubs and pools. If you have one close, they are the best for getting range back. I think I told you, I didn't get started soon enough, because of misdiagnosis and my left hand only came half way, and froze up there.
Something that helps me more a lot is anti-anxiety lorazepam, if i feel real anxious, they can keep a flare from coming on. Take care, Loretta
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