This might not be a subject the men won't want to talk about but I know some men deal with IC so they do deal with pain in that area.

I see this Surgeon Tuesday and I am having such a hard time hanging on. I have gotten worse over the past few weeks and I also deal with nausea when I am at my worst. I have thought about going to the ER but we have one of those ER's that don't know what to do for anyone. My only hope there would be to catch my ex PA there. He knows my history but again I don't know what they would do for me.

I have a patch on my lower left pelvic area. It isn't doing what it use to do that's for sure. I have dealt with this for over 4 years and as I've got more help for my IC and other problems I can tell now where I have this other problem at. I'm thinking adhesions my Dr. thinks as I said before Pelvic Congestion Syndrome.

It is as I said driving me crazy. Bill is having to do more for me in and out of the home, I can't hardly get dressed and yes my depression raises it's ugly head at times when I am in so much pain I'm delirous. I run my fingers through my hair in discust I guess you'd call it. I wish I were a Dr. I'd do my own damn surgery. LOL Funny but not kidding.

I guess I just needed to vent. If I weren't getting councelling to keep me in check until I see this surgeon I'd probably go barging into the ER crying and screaming. I just needed to talk about this. I can't get anything done. When a person is in too much pain they can't think straight. I'm not.

I haven't been getting dressed because of it, I pull my hair up and pin it up without combing it and I can't concentrate to take care of business. Does this sound familiar to any of you.

I think of that TV show, Just Shoot Me, that's my feelings at this point. LOL

Sorry if I rattle on, I think I'm trying to outdo jose on this post or Dana. How'd I do.

I could be on my death bed and I'd have a sense of humor so don't panic. I'm still holding on by a thread.

You guy could give me some encouragement here. I'm not giving myself any at this time.

Thanks to all of you and sorry if I'm getting off the forum subject here but I really needed to ven.
Ada

Ada Honey you hang on! Were always here for you. There is nothing you could ever be going through that would ever turn us off. We are always here for you my dear. I can only imagine how challenging it must be for you. I will have you in my thoughts and prayers that everything will be A-Okay!!! You are one of the sweetest people I know. It is your turn for a break from all this discomfort. I suspect it will be very soon. I am sending you nothing but truck loads of good vibes. And anyone else who needs some I have plenty more fo them too. Chin Up Sweetie! xoxo

Love Mark

Ada -

I have been meaning to post this link for a while now. Check out the site of Johns Hopkins' Study of Chronic Pain Syndromes in Women.

http://www.neuro.jhmi.edu/PelvicPain/home.html

I think you and others may find it to be of interest. Good luck.

Mike

It's interesting that 2 guys answered me but I'm glad. It shows strength in character.

Thanks for the info mike. It covers a lot of things that I have delt with and am dealing with. I have had good medical care for this and at times I think we are getting somewhere. I found a great Urologist and he has been treating the IC for about a year and before that I had his partner who I didn't like but his PA treated me for 3 years. They just couldn't find any meds I wasn't allergic too. They even tried a test on me to see if I really was allergic to the meds and I was. It proved I wasn't crazy.

I am not much better today but I am popping pain meds to try and calm it down and I talked to my councellor yesterday evening and he keeps telling me to hang on until Tuesday.

This problem here is something that started about a year ago and it's progressively gotten worse. I can't even function normally because of it. Of course I wasn't doing a very good job before. LOL

Thanks for all of the support. I'm doing my best to hang in there, I just hope this surgeon is a good one. We live in an area where we are known to have the worlds worst specialist. This one is fairly new in town though so I'm hoping he is different.

Thanks again,
ADA

ada,

sorry i haven't posted sooner.....i AM glad to see u here!.....hands have bben bad so mostly i'm lurking.

i have no info on this topic, i just wanted to say 'hi' and tell u that i think of u often.....there r SO many antique shops and flea markets aroun here, and they r reminders of your love for that kind of thing.

hope u get some helpful answers.

liz

Ada ,
i wish you the best of luck with the surgeon and hope they get some help and answers for you.

Thank you Jo for your help in all you've done for me and thanks for the support.

I am worried about this surgeon. I am blessed with some really good Drs. but when it comes to going to new ones I always worry about what I'm getting into.

I am hoping his office will contact my PCP so he will fill them in on his thoughts so I won't have to say much. I'm pretty good at talking to Drs. but I have made a few mad. I tend to speak my mind and say the wrong thing at times. If I'm stressed, I'm even worse.

I do see my Urologist the day after I see the Surgeon so I am thinking if he won't do anything for me then maybe my Urologist will. He is very agressive and I like that in a Dr. He's not afraid to do what he thinks needs to be done. With RSD I run up on a lot that aren't that way.

I sometimes think about not telling the Drs. about all of my medical problems but they usually have those medical forms to fill out. I don't even have room on those things to list everything and that's how I scared my hand surgeon. I didn't have to tell him anything though, he and my Neurologist and my Orthopedic Surgeon is in the same office so it's all on their computers. He'd already read mine before I got in there the first time. I was trying to figure out how he knew I had RSD. DUH!

I will say though if you go to a Dr. and you don't like him you can mention that to get rid of him. LOL

I no longer fear the RSD, I try and learn all I can about it to control it. Some Drs. as I said though do fear it.

Thank you for helping me with my name change. You didn't even know me but you were willing to jump in and help me with it. I really did appreciate you for that.
Ada

Ada: I hope everything goes well for you on Tuesday. Please let us know how you made out. Regards, Lil

Ada, is the IC that interstital cystits or however you say it? I have a friend in Oregon who suffers from this. She takes a medication that starts with an E (enbrel I believe?) and that's ALL. She's one of those who shy away from any type of medication, and Im trying to get her to stop that. She is in so much pain all the time that she can barely move, yet she works full time and runs her two teenage kids all over town. Is this what you are suffering from right now?

I hope you feel better sweetie. Please clheck in and let us know how you're doing....

Lisa it is Interstital Cystitis. That's only one of the problems I have in that area though. But that IC is a doozy.

She's probably on Elmeron. I couldn't take it but I know several people that tried it and it did nothing for them. I have 2 friends who are sisters in their 30's and both have it. They aren't doing well with it but I firmly believe that it's something as you said you need medical help for to try and calm it down.

The new treatments now is to put meds into the bladder to heal it where the adhesions or raw places are. One is where they put the Elmeron into the bladder. Another one is they now put Lidocaine in the bladder. They taught me how to do it here at home. I was allergic to all of the other meds they tried. There are more but I can't remember them.

I was going up every week for awhile to get it done but it just made me worse then they tried the Lidocaine and it does help for awhile but again it's something you have to do about everyday or night. Mine has calmed down some and now we are dealing with this other problem.

Tell your friend to find a good Urologist. I saw 5 before I found the one I got now and he is great. He just took a kidney stone out of me last month. He runs every test on me possible to find what's going on. I see him Wed. and he wants to do two more test on me. Can't remember the name of them.

I have a friend like yours too Lisa, I talked to her last night and she believes so strongly in God that he's going to heal her without any help from Drs. and she also takes natural herbs. I've learned about those. They can effect you just like meds do and not work with certain meds also.

She has the IC and Fibro. I do believe in God but I also believe that he's put these Drs. in my life to help me.

What I am suffering from now is either scar tissue or pelvic congestion syndrome and my PCP is hoping that this Surgeon will do a laproscopy on me to find what is causing the pain I am in. I just know it's driving me nuts. When I'm at my worst I am just nuts it seems like and I don't have much relief at any given time.

Ada