Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-10-2006, 10:29 AM #1
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Default OK.. HELP!! I hate vertigo...

Hey guys!!

Ok i need help.. For the past week ihave been getting mini spells of dizzyness and on tues had a bad spell once i woke up (even had them while i was asleep and they woke me up!!) went to the docs on tues afternoon after the bad one had past and he didnt see a infection or anything but put me on an antibioitc just incase and gave me more meclizine.. i take meclize like its freekin candy.

I went to a concert last nite with my parents.. haah i know, but they love country music and i wanted to see them , so i bought them tickets too.. was having a good ole time and then in the opening act, here comes a spell.. thats nasty .. i thought i was spinnin out of my chair.. I had to grab my dads arm and just hold on .. closing my eyes only made it worse... i couldnt even lift my head off my dads arm. So i hung on and it let up a little and was like.. listen.. i need to get out of here or some where off the floor so in case it gets worse again, that i wont be in the middle of a crowd. So my mom took me(looked like a drunken pirate, bc of my bad fooot and not being able to see straight) anyways.. i took 3 more meclizines and waited for them to hit me and i acutally got better and once the main act was on , i was ok!! well .. i still had that feeling in my head.. does anyone else get that?

So i watched the main act from the belcony seats and headed out... but this morning, i woke up , felt pretty good an then i am getting this feeling again in my head... like any thing will set this off.. I am on my 3rd day of antibiotics and notihng....

So do you all have any tricks or on any meds that definetly help?? I just called my doc that i seen on tues to see maybe if a dose of prednisione will help?? I am willing to do anythng.. i can handle pain!! lots of it.. but dizzy spells does it for me.. i am not in control and it can hit at any time.. i dont want too be controlled by this.!!

I seen an ENT last year that said i had auto immune inner ear disease.. be cause i do have contstat ringingin in my one ear that has also destroyed alot or most of the hearing out of that ear, but said you jus thave to deal wit it... i CANT!!!

so any help wold be appreciatied!!

Hugs!!
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Old 11-10-2006, 10:46 AM #2
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Hello Amber: Oh my goodness!! You have certainly had your share of problems. I cannot help you with your dizziness but I think (my brain is not too good at that lately) Allen had the same type of problem or maybe still does. If he doesn't see your message on the board here maybe you could PM him and ask what he does to help. I hope you soon find a solution to your latest problem. Being so sick in addition to being in pain is just awful.
Regards, Lil
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Old 11-10-2006, 10:57 AM #3
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Default Lil,

You might want to try this to see if it will get rid of the vertigo if that's what it is.

Lay crossways across the bed with you head hanging over the side. Lay on your back first, have someone turn you head to the left then right then toward the ceiling. turn on your stomach and have then turn your head to the left, right and then back to looking at the floor.

My Dr. explained this to me as there is a pea type grain in your head and it gets in the wrong place, I think towards the ear. You have to get that grain moved again. I know it might sound crazy and I'm not sure I explained just like he did. He made a house call to take care of me when this happened for the third time. I have fell so many times he didn't want me to fall again. After what I've put him though for 16+ years he's most likely trying to save his life. LOL

Do try this I believe I explained it just as he did it. Vertigo seems to come with TOS, I had it 3 times and saw 2 Drs and one Dr. in Denver did get rid of it but it came back even worse.

I hope this helps you. I do know what you are going through. Been there, done that.
Ada
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Old 11-10-2006, 11:27 AM #4
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Hey Amber,

Welcome to my world! I've had vertigo for 10 days straight, 24/7. Just woke up with it one morning. It's absolutely horrible. Ada, I saw a doctor a few days ago who tried that manipulation - didn't work, they don't know why, could be many things apparently, but the likeliest is what you mentioned - when it's constant. So I just got more motion sickness pills - they help the nausea, do nothing for the vertigo.

With me it's not exactly dizziness, it's that the world spins round, all day and all night, just like after you've spun yourself round like a top.

They think it may be the newish specs I have, they're multifocals and quite new; I said at the start I couldn't handle them, seems I may be right. I only wear them for the computer, but I'm working solidly at present. So today I'm specless, and got a headache instead.

I can't stand it! Here's what I've found. I can steady myself a bit for a few moments if I look up, like at the edge of the ceiling, and focus my eyes hard on something. Also, squeezing my skull at the temples - in fact wrapping a scarf tightly round my head - helps. But it varies, some day it's light, others it's worse and accompanied by nausea to the point of vomiting. I'm sick and tired of it.

Promise to let you know if I find a solution - if I ever return to the land of the stable - the doc said it can go on for weeks!! I know *exactly* what you mean, it's identical to the unsteadiness you get when you're drunk...but without the fun.

So HELP too! I've tried the exercises, sitting on the bed and swinging your torso from one side to the other; helps for all of 5 minutes. Don't know what the answer is - pleeease let me know if anything works for you!

all the best

Last edited by artist; 11-10-2006 at 11:30 AM. Reason: the usual...
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Old 11-10-2006, 11:52 AM #5
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http://www.emedicine.com/ENT/topic717.htm

http://www.merck.com/mmhe/sec06/ch080/ch080b.html

Last edited by buckwheat; 11-10-2006 at 01:11 PM.
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Old 11-10-2006, 02:16 PM #6
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Sorry to here that the manipulation didn't work on you. It did for me both times. The third time it was gone for good so I was thankful for that. You have to worry about falling when you have vertigo so you need to be careful.
It's most of the reason I'm so messed up today. I can remember the first time I fell. My head was spinning and it just seemed like everything was spinning around me.

Do try it again yourself and it might work the second time. It could also be your glasses as they said.

My worry for you is that you might end up falling and getting hurt because of it. Mine hung on for weeks before we figured out what it was. By the time we did I'd done fell several times and ended up so much worse off with my arms, hands and chest.

Good luck and I do hope you feel better soon, both of you.
Ada
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Old 11-10-2006, 10:45 PM #7
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Sounds to me like ya'll need to go see a NUCCA or Atlas Orthoganal (A/O) Chiropracter. And NO NO NO they do NOT take hold of your head & turn it & then give a twist & 'POP' goes your neck. The way you describe the vertigo/nausea it sounds like it might be the joint in your spine that is out is the top bone/joint of your spine called the "Atlas" It is the one your head actually sits on. If it gets twisted the teeniest tiniest bit around the brain stem you can have Vertigo forever. Anyway the only Chiropracter or Doctor of any type that can or has any chance of adjusting that area of the spine is a NUCCA or A/O Chiropracter. I have been to both types. They barely lay hands on you. So when vertigo/nausea happens to me I go to see Dr G (NUCCA Chiro) & have a treatment & it goes away instantly.

Just my suggestion to ya'll. If you want to stop having to take all those motion sickness pills this might be one way to do it.

No matter what you do, good luck.

DebbyV
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Old 11-11-2006, 12:02 AM #8
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I had vertigo a couple of times too.

The first time I think was the true motion sickness kind- lasted 2 weeks and was gone. Took Dramamine but still had some problems at work with it.

The second time it hit me was a couple months into my RSI/TOS injury.
I think that time it was due to the TOS/vertebral artery symptom.

GLASSES-
I got new glasses at that time too and told them i didn't think progressives would work for me {dizziness} dr said it's all in the fitting and they had the best fitter around - nope dude was wrong!
i should have got my money back right a way-but they kept trying to adjust them and I never could wear them longer than 20 minutes at a time.
and forget trying to shop in a store looking up/down and all just made me sick to my stomach too.

The last couple of times I'm not sure what it was - just quick odd spells of dizziness and a couple of times a faster heart beat along with it {those times it would last about an hour}.
But had the full panel of blood tests and a physical - thyroid , blood sugar, vitamins, etc. all came back normal. only high cholesterol- which I knew of already.
But after the phys and blood work it went away too.
now just once in awhile I get a quick spell- like less than a minute.

chiro info links-
http://www.upcspine.com/self.htm
http://chiroweb.com/
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Old 11-11-2006, 03:49 PM #9
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Thanks guys sooo much!!


I know exactly what you all said.. and I thought the pressing on the temples was my trick.. i learned that one last nite, bc i felt one comming on and i was like NOOOO i m gonna win and i presssed on my temples with my thumbs and lifted my eyes higher.. and it worked!! I won!! i felt there is my trick , I havent had a "dizzy"spell since thurs nite, but i can feel that sometihng is still lingering, if that makes any sense.. like if you move just right or let your eyes follow somthing fast that it will set it off.. so for the past 2 days i have been holding my head in a tilted position, bc it feels alot better, and laying low... I still thinks something else is up bc i never had this funky feeling in my head... i don tknow how to describe it, but its like a pulling sensation and a foggy feeling...??? grrr.. So i called my doc on frid and was like listen.. i cant go all weekend and the antibiotic isnt working yet... so he gave me prednisone for a week.. dont konw if thats the trick to the letting up of the spells but?? good lord y not.. right!

Ok.. gotta go.. belly is rumbling and not much to eat in the house.. gott to see if i can bribe someone to get me something..lol.

Thanks agian!!!


Amber
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