NeuroTalk Support Groups

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - red skin (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/60116-red-skin.html)

Quote:

Originally Posted by richard d (Post 411019)

Does anyone have large areas of very red skin like 5 inches in length and 5 inches width in neck and upper chest area? Also, if so does the redness blanche or turn white when pressed?

Thanks richard

Hi Richard!
I am one month into my diagnosis. It started in my left foot/ankle after surgery. My foot/calf turns bright red/mottled only when I stand. I have the tingling/pain/edema/electric shock sensations all the time in that foot as well. Over the past two weeks, I have noticed that my opposite foot also gets red (again, only when I stand up), although after a few moments the left foot is clearly more red than the right one (and further up my calf). I have noticed that when I push on it, it does turn white and stays that way for 10-15 seconds. I don't know if the RSD is trying to spread to the other foot (I have no other symptoms in the right foot yet.....only the left) but I wanted to respond to your question about it turning white. I'm glad we have this forum to ask questions and seek answers from other people that are living through it. Best wishes to you!

Richard,
I have had RSD for 20 years in July and I could send you pics too. I have a red neck and chest. I have full body RSD.
I am glad you brought this up, I thought I was alone on this one. I hate having my picuture taken because it shows up so much. My legs and arms are blotchy red, purple and yellow. I am really a very colorful person. LOL
Diana

Loretta Jewell...

Hi Hun,

I have thought about HBOT a lot, but I don't have any $$$. :( I hear that it is super super expensive. And to be honest with you, I haven't become an "expert" on the subject, like I have every other RSD topic.:rolleyes:

I will start to look into it, because everyone talks about it.

So, I am still having my flare-ups on my face, neck and chest and wanted to post a recent pic. So, I will post it to everyone in another message window.

Thanks for thinking of me. It means a lot! Hope you had a wonderful New Year. May this YEAR be better than last.:hug:

Huggs,
H

Quote:

Originally Posted by loretta jewell (Post 437010)

Hi Heather,

Thank you for the info on the topical oil. Yes, I havae the redness too. Usually when the skin temp. raises. I've had the itchy rashes and now a flare that brought 2 large skin lesions-very painful. I see my Dr. Monday.

Heather, on the itchy rashes, especially face, have you used clear lotion for poison oak?
It seems to calm and cool mine down.

HBOT is one of promising treatments for RSD. My Dr. , a Neurologist, Psychiatrist, and Pharmacologist is building 2 clinics with a hospital grade HBO unit in each one. They are about 5 minutes from my house. I have been seeing this Dr. 4-5 years and has helped me a lot.His father and sister are physicians. He also teaches,so just has a small part-time practice. He has helped to adjust and totally all my spasms, electrical jolts, jerks are gone thru meds. Blood pressure under control now I passed out for over an hour due to low blood pressure. 60/40 scary. was in hospital a few days
I'm reading everything I can about HBOT. Talked to Diana A. She has a home unit and working well for her. I've also talked to a private HBO clinic in San Fran. area, just north.
They were very nice. But I think I'll wait till my Dr. get's his installed next month.

Take care, always thinking of you.Have you read up on HBOT? We receive 21% oxygen
and with the chamber we receive 100% at 2.4 times the pressure. So it promotes healing, circulation, getting oxygen to areas that are lacking.

Be Well, Loretta Jewell

Pics of Face/Chest/Neck Flares..

Hey guys,

I saw that you were talking about pics of these flares and I have 3-4 a day now, so I have so many pics. I thought I would attach a couple...:icon_redface:

Enjoy!

Huggs,
Heather

Question Heather ??

Hi Heather,
Thanks for the photos.
Is your neck white in the center and red on both sides? Just curious. My neck seems to be white down the center and really, really red on both sides. My chest just get red. I need to send a pic, but I am not not good at that.
Thanks Di

Hi sweetie...If you look at the pic above you can see a lot of white in the center of my neck, but there is a small amount of red directly in the very center. I know the pic isn't very easy to see, but that's what I make of it.

I know that my ears get hot first and so does both sides of my neck. Then my chest gets hot and blotchy. So, yes! I guess it seems to be comparible to yours. My chest is always red too...It sucks so bad. I hate it. Plus, when you are fair skinned Irish/Swedish, it tends to stand out very nicely so that everyone and their mom can see whats going on, leaving us to explain....:mad:

If you look at both of those pics again. The "scary face" one, lmao - was taken almost a year ago and the other photo was a couple days ago. I almost have the same exact pattern on my neck. Weird that it hasn't changed.

Do you have your photos on your computer already or do you need to scan them or upload them to your computer?

Love,
Heather

Quote:

Originally Posted by DianaA (Post 438271)

Heather I have one pic on my computer that is easy to see. I put it in my album on the profile page. I'll give it a try again.... OK here you go. My ears get hot, so does my neck and it actually gets worse than this picture. This was a 3 years ago. Do you see the resemblence? It Sucks!!! DI

Quote:

Originally Posted by DianaA (Post 439476)

You know, Di......with that beautiful smile of yours.......NO ONE would notice the redness but you!!! You're gorgeous!!

Do you wear sunscreen on all exposed areas??? I know that sun/RSD do NOT mix......maybe it's a sensitivity to the sun???

Thank you for sharing your picture with us. I know it helps to see other people with some of the same symptoms as our own......we are not alone!!!

Thanks for the kind words. Yes, I do wear sunscreen, everyday in New Mexico. This redness comes and goes and has for years. I am not always red. Fortunately, I did not have this in childhood or teen years. All my pictures then, are great. I do think that may have been traumatic, if that were the case. Only since the RSD has this redness been making its appearing and disappearing act. Sometimes it is much redder than in that pic, I'm sure I could find those, but I'd rather not share them.
Hope you are doing ok. Love Di

WOW!! I see it Di...I am so happy that I have seen your pic now. I know that I am not alone.:)

It's always worse than what the pic shows, huh? I know this for sure. Thanks for the pic girl.

Love,
H

Quote:

Originally Posted by DianaA (Post 439476)