Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-08-2009, 11:01 AM #24
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DianaA DianaA is offline
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Join Date: Jun 2007
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DianaA DianaA is offline
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Join Date: Jun 2007
Posts: 329
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Quote:
Originally Posted by SandyRI View Post
hi Diana,

I tore my rotator cuff in Nov 2006, had my first repair in May of 2007 and the second in April of 2008. My PM doc thinks the RSD started the day I hurt myself. I went into a major RSD flair the summer after the 2nd surgery, the doc said the aggressive PT by the orthopedic therapists (i.e."RSI") instigated it. At the end of the summer the RSD began to spread everywhere, the worst has been the impact on the side of my neck and the back of my head.

I think because the RSD was isolated to my shoulder at first it didn't get diagnosed for a real long time. Its harder to see the swelling there vs. a hand or a foot.

Now I'm working on getting better. I take about 20 pills a day, go to a different PT who has experience with RSD and is WONDERFUL, and started getting SGB with a great medical team in Boston. (I was supposed to get my 2nd block today but its been rescheduled for tomorrow.) If the blocks don't work I hope to be able to try lidocaine or ketamine next.

How did you hurt yourself? What treatments have been successful for you? Did you ever get your strength back in your arm and shoulder? How about ROM? MY PM doc says that repetitve motions are a big "no-no" for me. I worry that I'll never be able to resume doing all the housework and yardwork that I did before I hurt myself.

Good to "chat" with you, please keep in touch!

Sandy
Sandy,
The injury was in 1989. My RSD also started from injury. I lifted an oven, about 180 lbs into a Uhaul trailer. It was lying down on a two wheeler. I bent over and picked up the two wheeler handle aand the rest is history. I weighted about 115lbs. Insane I know! Agressive PT then surgery caused the spread. I have had a frozen shoulder with major limitation on range of motion for years now. I also haven't done PT in years, it just wouldn't help anymore. HBOT is the only treatment that seems to help me at this point. I understand the pill thing, unfortunately we lose ourselves in the process. A necessary evil. But, what would we do with out them. Yesterday, I bumped my ankle and wow, have I suffered. It is still swollen today and the entire leg aches. I'm off to the doctors now, great chatting with you too! More later Di
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