Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-20-2008, 01:36 PM #1
Linmarie Linmarie is offline
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Linmarie Linmarie is offline
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Default Sacroilac Pain & Muscle Spasms

Hi everyone,
I haven't posted in quite awhile because I can't sit very much but I do want to share my experience in hopes that it may be able to help someone else. Six months ago I got severe pain in the sacroiliac (SI) after being stuck in traffic for over an hour. I had two previous occasions of flare-ups in the SI and received trigger point injections which calmed it down. This time my PM wouldn't give me one but gave me a RX for fentanyl and wanted to do a nerve ablation. Maybe I'm in denial but I thought this was a rather drastic jump and went in search of another doctor. Finally (after several months of waiting and a couple of ortho docs who were no help), I got into see a PM at UCI who immediately gave me a trigger point (much relief) and scheduled me for SI injections. The first time they injected cortisone & marcane into the joint. It gave me relief in the joint but that evening I had terrible muscle spasms in the surrounding area. The second time in addition to the injection in the joint they did several trigger points in the surrounding areas. They hit several spasms which even made the needle vibrate. More relief from this one. I have another scheduled for next week. In the meantime I am going to PT to try and stablize the joint. Still getting bad spasms which could be pulling the joint back out. My PT also thinks I have some tendonitis going on there. Bottom line, It hurts very much to sit & I think if I had been able to get injections sooner it would not have gotten as bad. Unfortunately, I am now, at times, experencing that dreaded "burning" pain in the butt.
I have some other observations that I would like to post & some posts that I would like to answer later when I can sit/stand longer.
Take care,
Linmariie
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Old 11-20-2008, 06:49 PM #2
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Jomar Jomar is offline
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Default

Way back in my 20s {30yrs ago} I pulled something and the dr called it a sacroiliac strain.
After it healed I had no problems in that area until a few years after my RSI/TOS came about.

Mine is a ache that can occur deep inside the low back/hip area, and a ligament/muscle thing it seems like to me. Mine is only on the left side which is the side that was injured all those yrs ago.
Mine comes and goes depending on activities.
Takes usually a week to calm it down.

plus my hips are tilted a bit as well as ribcage & shoulders
So my chiro always has something he can work on LOL.

Hope you can keep getting continued relief- if not afix.
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Old 11-26-2008, 01:15 PM #3
beachedsiren beachedsiren is offline
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Default SI Joint Pain and Prolotherapy

One of the things that has helped my SI Joints to become more "stable" was Prolotherapy Injections. You can go to goprolo.com for a detailed description of these treatments but the short version is this: a sugar substance is injected into the ligaments that connect to the bone. The shot must be placed exactly where the ligament attaches to the bone. This causes an inflammatory reaction which then causes the ligament to tighten up making the joint more stable. Many people with joint problems may have a condition called ligamentous looseness. Fancy term that means one has stretchy ligaments and thus your bones are not held into place properly. These injections hurt like crazy for several days and you must avoid taking anti-inflammatory drugs like Advil, aspirin, etc.

It may be worth considering for your SI Joint pain. I've had all the PT, shots, radiofrequency treatments, chiros - the whole nine yards. However, if the problem is your ligaments none of this will help in the long term.

Thoughts for your consideration

Beachedsiren
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