Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 11-22-2008, 02:37 AM #2
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GalenaFaolan GalenaFaolan is offline
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GalenaFaolan GalenaFaolan is offline
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Join Date: Dec 2006
Location: Florida
Posts: 445
15 yr Member
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It's pointless. You have a couple that can truly be called rsd specialists,1 example that comes to mind first is Dr. S. There are still far too many docs who don't believe it's even real and are the ones who say "You can't still be in pain,it's all in your head." I say to them, yeah right....whatever! LOL Then there are docs who know the very basic amount of info about rsd but may be at least able to recognize it when they see it and lastly, those docs, like my pm, that sees many rsd patients, is well educated about it and can treat it, well, as much as rsd can be "treated".

Oh,the docs who know what it is but are still in the stone ages with much of their info insisting if you don't have A,B and C then you can't possibly have rsd and the best line of all....it CAN't spread!! *snorts* HA! I have a few thousand people, myself included who are living proof that it dang well does! LOLOL

I wish ALL docs and incoming docs were well trained and educated about rsd, how to dx and treat according to each individual and not making sweeping generalizations. We all have the same dx but not one us experiences it the same way. I think that's why it's impossible to make any headway in treatments,never mind finding a cure one day. Take blocks for example. 10 of us can go in for lumbar blocks and each one of us will have a different reaction to it,whether it's good,bad or neutral. Now how are researchers supposed to find the "one" treatment to stop it when we all react differently? That's something that occurred to me within the 1st year.

Hugs,

Karen
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