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Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS) |
View Poll Results: Do you think RSD can be a cause of death (excluding suicide)? | ||||||
Yes, and I know someone who died directly from RSD. | 1 | 8.33% | ||||
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Yes, I believe it can cause death but I don't know anyone with RSD who has died directly from it.. | 10 | 83.33% | ||||
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No, RSD cannot be a cause of death. | 1 | 8.33% | ||||
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Multiple Choice Poll. Voters: 12. You may not vote on this poll |
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07-14-2010, 07:20 AM | #11 | ||
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This is not the first time I have heard that the west coast does not have a very good medical community. I am sure there are great doctors but hard to find.....But I have never heard of any one passing because of RSD. |
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07-14-2010, 09:22 AM | #12 | ||
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Junior Member
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I am so sorry to hear that gabby cakes. But do agree with you I liven southern California and saw about fifteen doctors without getting diagnoised. Even childrens hospital told me it was all in my head. My parents and went to bosons children hospital for a diagnose
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07-15-2010, 08:30 PM | #13 | ||
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Member
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Dear RSDno,
Wow, you are one brave person to have lived with this monster for so long and the after effects of trying to end your life. I don't know how you do it. You are my hero! I did want to die the first year of having this (over five years ago) because the pain was so intense and I had lost so much instantly the first year but then I started praying and realized that God left me here for a reason and each day I try and figure out what it is. RSD affects each one of us in different ways. I am almost quite sure an ME would never put a person passed away from RSD because not many people know what it is...even doctors! So, I believe they would be most likely to put heart attack, stroke, etc... just my two cents. Also, from an ins point of view if the ME put RSD and it came from an injury then workers comp would be sued by so many people they would be out of business. I believe when it is your time to go it will be that time so we need to make the best of our lives and do the best we can each day. Yes there are days I hate my life and yes the suicide rate for people with rsd is 76% in the first five years (very sad), but we just have to do the best each day...it is all we can control in life. You are an inspiration to us all. Keep the faith going. Take care, kathy |
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"Thanks for this!" says: | rsdno (01-22-2012) |
07-15-2010, 08:38 PM | #14 | ||
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Dear Tmullen and All,
I even had a doctor here in Pennsylvania tell me that he had the same type of injury when he was 8 years old and he NEVER got RSD...so then I should not have it either. I just looked at him like he was an idiot (which he was). I think no matter where you are you will have good doctors and then you will have quacks. The problem for us is trying to decipher between the two! BEst of luck to all, kathy d |
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07-16-2010, 10:27 PM | #15 | |||
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This is an excellent post and makes us all wonder...I have been having a huge problem with high blood pressure and it has made me think about everything I eat, because I have to certainly have to watch my salt intake. I have recently learned that high BP goes hand in hand with RSD and my doctor informed me that if I didn't get my yo yoing BP under control I would certainly have a stroke...he stated that he attributes my BP issues on RSD, so in some ways I feel that RSD can cause someone to die.
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07-17-2010, 07:39 AM | #16 | ||
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Much love, Kathy..KS!! |
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07-17-2010, 12:06 PM | #17 | |||
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Magnate
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One of those Fox stories mentioned suicides. I know between BT and NT we have seen 4 or 5 to die and all have been from suicide..
I know a lot of people around my area with RSDS and we are all still kicking. It may cause strain on our heart from the pain or maybe bring on other illnesses that can cause death. Haven't heard of a death by RSD only. Ada |
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07-17-2010, 01:22 PM | #18 | ||
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Love, Kathy |
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"Thanks for this!" says: | RSD ME (12-20-2014) |
09-29-2010, 12:45 PM | #19 | ||
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09-29-2010, 04:24 PM | #20 | ||
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You are always so positive Kathy, you are light! My hero
God bless you and everyone here Lori
__________________
Wishing you a day of pain free movement that turns into forever! |
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