Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 04-19-2009, 08:50 PM #51
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Great job!!
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Old 04-20-2009, 12:01 AM #52
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Quote:
Originally Posted by AintSoBad View Post
Andrea,
I think you did a most outstanding job with this paper! A+ is the Least you should / could have gotten!
It's easy to see the amount of time, and sweat you put into it.


I want to say just a word about Denny's comment.

I'm going through a hellacious divorce, it's been more than a decade. I had a TBI, on top of the full body rsd, and I am on medications. The TBI is besides the normal tearing/swelling, I also have a subdural hematoma at the top of my brain stem. I was in a "walking coma" for a few years. During this time, my wife emptied my bank accounts, and stole most every asset that myself and my two business's owned. Even emptying my daughter's bank account. My two children and myself were thrown out of MY own home three times. (Her name is not on my house, nor, or they her children). Now, she is trying to take that house, that she never paid a penny into.

While reading your paper, I thought wow, here's a way I can make the court realize quickly and efficiently part of what I'm going through. (I have a document on the TBI, but, it's almost 100 pages) Judges like things concise. All was great until I came to one line:

"Drugs in these classes are usually favorable among people because of the high they get."

I felt a charge go through my body! (There's just something about that sentence).

I feel that sentence is somehow worded wrong. It can be taken out of context too easily, on a touchy subject.
(In all fairness to Denny, You did ask for comments.)

You see, my wife, being the charming person that she is, (did I mention she woke me every morning for six months by spitting in my face, and telling me to get up and commit suicide, and take my daughter with me?) Yea, because I'm worthless.
This sweet heart of a lady is telling the court that I was "hooked on narcotics" and therefore abusive.
Her lawyer, in court questioned me if I was still taking methadone.
Of course I am.
(My lawyer didn't show up). Nothing about my RSD, my pain, or any truth came through.
These kind of people not only don't understand, they cannot empathize, and WILL USE IT AGAINST US, if they need to! Remember, there are LOTS of people (Disabled with RSD) who will go through court trials. (I have quite a experience on that one too.)

This attitude is so damaging and pervasive, in the community, that it has to be shown to be wrong!
I have NEVER gotten any kind of buzz from methadone. (That's why it's used to nurse addicts off of Heroin. No BUZZ!) Or, any medication that I take for that matter!

I think perhaps Denny was talking about this sort of situation coming up. I'm not sure.

We are weakened people living in an ocean of sharks. Weakness is condemned. The weak must die. Only the strong survive. You've heard them all.
People are not "naturally educated" about medications, because they are drugs. And therefore, their ignorance and arrogance can take over. Watch TV any night of the week, and you'll likely see an "anti-drug" ad.

I do think that your paper was absolutely excellent, but for that one sentence.
(I think I would simply omit it),, but then it wouldn't be YOUR paper!

Heck, I couldn't write better!
I'm really glad you got the grade you did, you certainly deserve it!
And, I do NOT mean to take anything away from you, or it!
Just a different perspective.

Pete
ASB
In that one sentence I said "people" meaning a general population, not just us with RSD. I do see how it can be misleading. And if those of you who are passing it along wish to omit that sentence go ahead.
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Old 04-20-2009, 12:02 AM #53
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Quote:
Originally Posted by AintSoBad View Post
Andrea,
I think you did a most outstanding job with this paper! A+ is the Least you should / could have gotten!
It's easy to see the amount of time, and sweat you put into it.


I want to say just a word about Denny's comment.

I'm going through a hellacious divorce, it's been more than a decade. I had a TBI, on top of the full body rsd, and I am on medications. The TBI is besides the normal tearing/swelling, I also have a subdural hematoma at the top of my brain stem. I was in a "walking coma" for a few years. During this time, my wife emptied my bank accounts, and stole most every asset that myself and my two business's owned. Even emptying my daughter's bank account. My two children and myself were thrown out of MY own home three times. (Her name is not on my house, nor, or they her children). Now, she is trying to take that house, that she never paid a penny into.

While reading your paper, I thought wow, here's a way I can make the court realize quickly and efficiently part of what I'm going through. (I have a document on the TBI, but, it's almost 100 pages) Judges like things concise. All was great until I came to one line:

"Drugs in these classes are usually favorable among people because of the high they get."

I felt a charge go through my body! (There's just something about that sentence).

I feel that sentence is somehow worded wrong. It can be taken out of context too easily, on a touchy subject.
(In all fairness to Denny, You did ask for comments.)

You see, my wife, being the charming person that she is, (did I mention she woke me every morning for six months by spitting in my face, and telling me to get up and commit suicide, and take my daughter with me?) Yea, because I'm worthless.
This sweet heart of a lady is telling the court that I was "hooked on narcotics" and therefore abusive.
Her lawyer, in court questioned me if I was still taking methadone.
Of course I am.
(My lawyer didn't show up). Nothing about my RSD, my pain, or any truth came through.
These kind of people not only don't understand, they cannot empathize, and WILL USE IT AGAINST US, if they need to! Remember, there are LOTS of people (Disabled with RSD) who will go through court trials. (I have quite a experience on that one too.)

This attitude is so damaging and pervasive, in the community, that it has to be shown to be wrong!
I have NEVER gotten any kind of buzz from methadone. (That's why it's used to nurse addicts off of Heroin. No BUZZ!) Or, any medication that I take for that matter!

I think perhaps Denny was talking about this sort of situation coming up. I'm not sure.

We are weakened people living in an ocean of sharks. Weakness is condemned. The weak must die. Only the strong survive. You've heard them all.
People are not "naturally educated" about medications, because they are drugs. And therefore, their ignorance and arrogance can take over. Watch TV any night of the week, and you'll likely see an "anti-drug" ad.

I do think that your paper was absolutely excellent, but for that one sentence.
(I think I would simply omit it),, but then it wouldn't be YOUR paper!

Heck, I couldn't write better!
I'm really glad you got the grade you did, you certainly deserve it!
And, I do NOT mean to take anything away from you, or it!
Just a different perspective.

Pete
ASB
In that one sentence I said "people" meaning a general population, not just us with RSD. I do see how it can be misleading. And if those of you who are passing it along wish to omit that sentence go ahead. But it does hold true for millions of people.
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Old 04-22-2009, 08:57 AM #54
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Default Denny, your welcome

Quote:
Originally Posted by dennyfan View Post
CZZ74, I apprecite you posting even though it wasnt popular opinion. I felt less alone. I tried to write it in a way that wouldnt be too offensive & got attacked anyway. I just felt like we have this negative imagine hanging over us enough. Some days I would give anything to get a high off my pain medication. Just to be taken away from this for awhile. Does that make me a bad person? I dont think so. I wont drink a drop of alcohol because of the mixture with my meds. And I dont misuse my prescriptions. Yet there are people out there labeling me & my friends. I dont like it. Take care & thank you for making me feel less alone.
Hugs, Denny

PS Here is a link with a picture of how small Advanced Bionics SCS is http://www.prnewswire.com/mnr/advancedbionics/12205/

Denny, your welcome. Happy to provide support as I understand commpletely, I can hardly get treated in a n er when they see my med list even though I clearly state I am not seeking scripts! I too just wish once that I felt something from my meds other than breakthrough pain and constipation LOL So hang in there. We have to keep clearing that point up!! Take Care CZ
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Old 05-26-2009, 01:33 AM #55
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Quote:
Originally Posted by CZZ74 View Post
Denny, your welcome. Happy to provide support as I understand commpletely, I can hardly get treated in a n er when they see my med list even though I clearly state I am not seeking scripts! I too just wish once that I felt something from my meds other than breakthrough pain and constipation LOL So hang in there. We have to keep clearing that point up!! Take Care CZ
just bumping up for newbies
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Old 10-24-2009, 11:18 PM #56
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bumping up for the newbies that have joined us
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Old 10-25-2009, 12:37 AM #57
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This deserves to bumped to the "Top"!
Even though I have a slight issue with that one sentence, ( it could have one's own omission, or correction, it's great! )
As I know,
It's probably my own misconception!
Nobody with true "RSD / CRPS" pain is seeking drugs, except for pain relief, and to offset any Doctor specified RSD / CRPS specified side effects!

I'd like to thank and commend you again for your time spent in writing it!!!
I've witnessed that,
You are a true "Star" to our cause, of pain relief, for RSD / CRPS!
And, I thank and commend you!
Thanks, Andrea!

Pete
ASB

Last edited by AintSoBad; 10-25-2009 at 12:46 AM. Reason: spelling
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Old 10-25-2009, 10:50 AM #58
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Andrea,
that is just unbelievable!! may i print that out and pass it around to some family members? Thank you for putting it into words, that hopefully, everybody can understand. Be proud of yourself girl, that paper is remarkable. i send you hugs and best wishes. and thank you again for putting out such an amazing way for us to explain things. !!!!!
i'm going right now to show my family.
hope your day comes as a low pain day.
your friend,
taylor
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Old 03-28-2010, 09:56 PM #59
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i dont think anyone could have explained it better.. i would like a copy if you could email it to me.. just pm me plz. my family doesnt understand.. and i cant seem to get it out right..
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Old 03-29-2010, 07:24 AM #60
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you did a awesome job Andrea A++++++++ for you hun
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