Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-20-2006, 12:20 PM #11
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LisaM LisaM is offline
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LisaM LisaM is offline
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Quote:
Originally Posted by Goodn'Plenty View Post
Lisa ,
I think you got some really excellent replies.

You can't live in the past ,you only have now .
Taking some time out to mourn is very valuable but you have to draw the line somewhere.It can't go on forever.

The reason that your case study worker will send you to counselling after x amount of time is that studies show that anti-depressants work more effectively in conjunction with counselling esp. if you are really symptomatic.
Anti-depressants aren't just a miracle drug on their own .They are usually recommended with counselling.Of course in cases with CP when health issues cause depression etc it is another game altogether but that does not change the significance of counseling if you need it.
Maybe you hated that counselor.
Is there another one you could try.
These days counselling isn't a forever commitment .
It may just help you get over this hurdle you are presently confronting in a quick and efficient manner instead of drawing it out forever-just a thought
( i have a few more )
If you are reading ,the Jon Kabat- Zin Book- Wherever You Go There You Are is particularly relevant right now - also all those meditation techniques people offered to you in the thread you posted .The book is not just about meditation but specifically about what the title says.Wherever you are now is your life- so learn how to love and accept it .(I paraphrase and not very well ).
Now more than ever it seems so appropriate.
And your husband sounds so supportive and loving ( a real keeper ) I think he will understand the concept of mouning the old ,what is lost and how to move forward in this new and different life.
He also sounds feminist at heart.He does not expect you to do all the "woman "chores.He is happy to share as he should be esp after you worked all day (even if you were not "injured") so welcome to 2006
Letting go of the past is an extremely important step in this whole process and the sooner you do it the healthier you will be- no matter how painful it seems to do it!
I was a professional athlete , type A the works like many of us ...and now.....You just can't live in the past once your life has been so radicaly changed .That is a recipe for depression and major confusion.
Your life has taken a huge U turn and to pretend to tackle the same challenges as the same person you were before is a huge obstacle to your progress and acceptance of current circumstance and self love.

I am not saying your heart and soul are not the same(probably stronger and even more sympathetic to other's) but your circumstance has changed and the sooner you accept that the easier it will be to deal with life's quirks and challenge's.I know much easier said than done.

I don't take any anti - depressants as I meditate and still exercise which releases more endorphins than any pill however I do know a little about it from my past.

Your recent depression seems to have crept up on you .Do you think it could have anything to do with the recent addition of provigil to your drug regimen?
I am just throwing that out there as we all know how a new drug can interfere with our already established drug protocols.
Frogga mentions that effexor is part adenaline and then to add provigil which keeps you awake( a very good thing at the wheel) well , you just never know chemically how the two are interacting in your body.
As depression is a chemical imbalance- some of us with a true chemical imbalance ;some disease caused and others caused by adding meds to their regimen ,we have to be particularly careful of the chicken egg theory.I would certainly discuss this with your doctor if there is a relationship between the two(addition of provigil to your already established protocol).
Such little tweaks can certainly mess with a chemical imbalance!!!!!!.

Another thought as you don't mention it... , have you tried topomax?
I have always been lean but I have heard that topomax is the perfect drug for those that are scared of the weight gain issues of neurontin etc.
(Hey , one less thing for you to worry about )
I had no side effects from day one and could titrate up to 400 mgs within a month but other people as with neurontin and the others- tegretol etc. have had their their share of side effects hence topomania - stupamax.
It has helped my burning tremendously!!!!!!!!!!!!!!!!
That is the one drug I would not want to be on a desert island without - plus I am never hungry which for me is NOT a good thing.I have to force myself to eat.
I don't recall the last time I had more than 1200 calories in a day.

I will leave you with my favorite new expression ( new meaning since I became this new improved person )

"Worrying will not change the outcome ."

so why worry ???The oucome will be the same whether you worry or not.
It just makes you more stressed hence more symptomatic and on and on...

I certainly hope you feel better.
You can't live in the fog forever so if it doesn't lift after x amount of time and if you aren't achieving what you set out to do please go to a Plan B
I certainly hope some of these good people's ideas' made some sense.

Much peace
GnP
Thanks, GnP
I think my recent depression may be a combination of things...and mostly PMS Secondly, I know my SO gets tired of doing his stuff, PLUS add the stuff I'm usually responsible for on top of it, and I'm sure it's just too much for him soemtimes. He's one to always overexaggerate how "busy" he is all the time. He has his own business, works only 6 months a year, gets up at 9, to work by 10, home by 3:30 or so...yet he's sooooo busy whenever he talks to someoene. Knowing that about him, I just kinda fell apart for a while. I'm better today, after a weekend of laying on the couch, being lazy one day...then helping out a bit the next. I'm still not "me" but I'm also physically SPENT as well. A lot of that has to do with the darned restless legs not allowing me rest. I hate that.

I do take topamax at night before bed. And the provigil...i don't thinkt hat had anything to do with this bout of depression. I think it was hormonal. I HOPE SO anyway. It's just I think a lot of ppl are pushing me to get disability...yet I don't want to admit I'm worse than before. I'm not helping out so I dont feel I'm "worth" much anymore. I AM getting worse...not much better. The weathr sucks, and is sucking every bit of energy out of me that I had left. It is just a phase, at least I hope so.

I'll give myself until next weekend to "snap" out fo this. That will give me a nice 4-day weekend and I see the doctor on the following Monday. If I'm not out of this funk ny then, I'll talk to him about this.

I do appreciate all everyone has done/said to help me thru this. I knwo you have all been where I am at one time or another, so you can all understand. Nobdoy was quick to push me into counseling, but you WERE quick to "get me" whereas nobody in "real life" culd. All they asked was "are you on antidepressants? Maybe you need more!" In actuality, I think they worry about me....but I don't think they understand this "cycle of pain" we're all in sometimes includes this bout of depression that does go away after a bit.

Thank you all for being here for me...for EVERYONE really.

You're all fabulous.
__________________
Hugs,
LisaM

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Visit My Message Board - Helping Custodial Parents Collect Child Support From Deadbeats for 7 Years
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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