Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 11-15-2006, 03:21 PM #1
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Default How can you be depressed if you already take antidepressants?

Friends, I do feel myself getting increasingly depressed as days go by. Every day I feel myself slipping further and further into a funk. More and more, I feel less and less useful to my family, my home, my job...etc. I hurt SO BAD and I can barely do anything once i get home from work. I just cry, head up to my room, turn on the tv, change into my jammies, and lay in bed. SO brings me dinner and helps me shower and it's off to sleep we go - eventually, and only IF the pain lets me.

But I take the MAXIMUM effexor allowed. Not for depression, but it's what helps my burning pain. So if I already have an antidepressant in my medication regimine, then what??? I certainly DON'T want to be sent to see the counselor at the pain mgt clinic...and if I tell them this is what I'm going thru, that's what they'll do. I've already been thru that whole thing, and don't want to do it again. I know what I have to do, but I dont' WANT TO. I just want to be allowed to feel like a failure for a while. I want to be allowed to cry, to feel miserable, to feel sorry for myself, ya know? I've held up and been strong all this time...and right now I just don't FEEL LIKE IT!

Why are we not allowed to act like we REALLY FEEL? WITHOUT being told we have to see a shrink or something? And why is it that we can feel this way when we're already on the maximum antidepressant dose allowed?

Then again...maybe i'm just going thru a "thang" and I'm just THINKING this is how I feel...I don't know...sigh....

Ignore me if you want. Thsi just may be babbly. I'm not too sure of much anymore at the moment.
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 11-15-2006, 08:15 PM #2
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I was just thinking if the ad is helping with the pain maybe another one is needed for the actual depression..??

I'm not all up on meds or that sort of thing - but maybe one works more pain wise for you and a different one would work better for the depression?
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Old 11-15-2006, 08:27 PM #3
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(((lisa)))

there are ad's like cimbalta that treat pain and depression. ( not saying you need cimbalta..giving an example)

sometimes you have to change if they aren't working enough for you anymore.

the members who post on the depression may know more about the meds.
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Old 11-15-2006, 09:49 PM #4
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Default Hi Lisa,

Are you taking anything else like Neurontin or Lyrica for the burning/Pain?? I take Neurontin and dont know what I'd do with out it. I know that some on the forum have been through several anti-depressants before they find one that works for both the pain and depression.Cymbalta seems to be a favorite, or at leastone that came up frequently on the old forum.

Some days I feel the "I want my life back Blues" as I call them, and they are so overwhelming. I have to let myself cry and hurt, because if I don't I find myself slipping into that horrible place you are describing.

When I first brought it up on the forum, everyone here was so supportive and encouraged me to grieve for the old life, for the things I've had to give up, for the feeling of life passing me by, for feeling useless and worthless and misunderstood. It really has helped me to let go of the emotional pain. I am not one to cry, and feel like I always have to put my brave face out there for everyone else. In fact I worry more about others feelings than my own!

Dr. Ellis says that is very common with TOS'ers. Seems like the majority of them are caretakers, type A's or other types that over extend themselves until they are empty or in pain, or both. Anyway, that description fits me!

I hope that you will allow yourself to grieve the things that you are hurting over and be okay with that. I personally don't think it means you have to go to therapy right away. Maybe allow yourself some time to see if things get better, and if they don't then think about seeking help?

I am sure others will post with their thoughts and words of encouragment. In the meantime, I think you should buy a big box of chocolates!! That always works for me !!

Take Care,
G~
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Old 11-15-2006, 10:18 PM #5
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((((((Lisa)))))),

You're taking Effexor -- that's chemically the same as Cymbalta.

Sounds like it works that same for you as it did for me. *NOT*!! I actually got kicked out of the clinical trials a couple of years ago 'cause it didn't do a darn thing for the depression. But, it worked fantastically on my pain.

I wanted to take prozac in addition to the effexor -- I was told by the researchers that it was OK to do that.

I went to a new shrink a couple of months ago. This Fall was particularly bad for me because last month was the 40th anniversary of my Brother's suicide. Those "even" years hit hard for some reason. I didn't even realize that was why I was slipping into depression again.

I went to a new shrink. She upped my Effexor -- even though I didn't want to; I wanted the prozac "in addition to". The high dose of Effexor was like taking speed. I couldn't sleep at all. I was up all night and only took naps in the daytime. That was bad for my fibromyalgia -- because you HAVE TO sleep well or the pain gets worse.

So ... for one month of taking the maximum dose of Effexor XR, it took me about 6 weeks to ramp down to the lower dosage and get all my "insides" back to "normal"

If you've got good pain relief from the Effexor, you might want to talk with one of your doctors about adding one prozac per day. The Effexor has two chemicals in it -- one is the same as the prozac -- so you're getting a lower dosage of that particular drug. If you take the high dosage of Effexor, you're getting a lot of adrenaline -- which is not great for mood leveling or for sleeping.

Talk to your doctor about ramping down the Effexor **SLOWLY** to the dose that you were taking before -- you can get horrendous withdrawal symptoms for months if you ramp down too fast. And ask to be put on one prozac in addition to the Effexor to see if that drug combination will work on your depression.

In the meantime, take care of yourself. Less *SHOULD DO* and less *MUST DO*. More *WANT TO DO*. Tea in china cups. Soup and sandwiches for dinner. Forget the housework. Grow some flowers or visit a flower shop. Treat yourself **SUPER SPECIAL** 'til you get a handle on this. Then you can ramp down to just treating yourself *SPECIAL*

Hugs.

Barb
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Old 11-15-2006, 10:42 PM #6
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Dear Lisa

Sorry you are feeling so down.... . ((hugs)). Firstly the psychologist in me wants to talk neurotransmitters....... depression can be caused/ affected by loads of chemicals, is likely that your drug (can't remeber name) is only helping get the correct balance with 1 or 2 chemicals not all of them. Also like pain drugs different drugs work for different people. Also - I'm not good at US names for drugs - but it sounds like you are on amytriptylene which is a tricyclic antidepressant which isn't overly effective in the treatment of depression....

I know I have down days - thats what I've had the last couple of days. When I realise I am going on a downer I give myself 3 days to feel dreadful and then I have to pull myself out of it. In those 3 days I can whinge as much as I want, refuse to do anything that hurts too much that can be avoided, eat as much chocolate as I want (lol....... luckily I am so nauseous I can't touch it!) etc and I let myself feel sorry for myself. I didn't learn that sometimes you just have to go "life is an absoloute &%£"£" and feel sorry for yourself because no one can stay strong forever. It just isn't possible. Sometimes you have to admit how hard this is to live with and what it has done to your life and how it has changed you.

Mini controlled depressions are GOOD as long as you have control when they start and you know you can pull yourself up again or have people who can help you to be happy again after a day or 2 of misery.

it's bizarre but it really does feel better once you have done it! a friend of mine has chronic pain too and we have this agreement that for 3 days we can moan as much as possible and give everything horrible a miss. But we then have to start normal timetable on day 4.. sometimes just a break from being strong makes such a difference.

Take care and hope things pick up soon!!!

Rxxxx
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Old 11-17-2006, 08:40 PM #7
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Thumbs up Depression with Anti-Depression?????

Lisa,
I feel for ya believe me! I live in PA and the freakin' weather is changing up and down like crazy and driving me nuts too. I am on a low dose of Zoloft and it has helped me alot in the past. I was sitting here day after day just crying at least three times a day. RSD and everything it does to every aspect of your life is depressing. I went into the doctor and told him I needed anti-depressants before I lost it. I have been on 12 mg for about a year or so now and it does work. However, I have noticed before my period is due I get REALLY more depressed and cry alot or if the weather is really bad. I think you are NOT a failure...you are my hero because you can go out to work all day;.> You are truly amazing to me. RSD affects EVERY part of your life. I have lost my entire family in the past 21 months with this full body RSD. My father died unexpectedly in March 06 and my older sister called me up and asked me not to bring my wheelchair because it would upset my mother!!! Can you imagine how hurt I was? I told her mommy is already upset and I really don't think she cares about anything right now except my father. I am sure you understand. I have used crutches for almost two years now and have the wheelchair for walking long distances. My family has denied everythng that has happened to me and isolated my son and I [he's 17 years old]. My son has even noticed it in the last year or so and brings it to my attention. I just tell him that our family consists of him,me, our cat, and our fish and no one else. Last month, my oldest nephew was married and I showed up with my crutches and in my wheelchair with my son cruising me all over [He is such a great son]. Everyone had to sit and watch all the pain I go through each day and I think then they realized what each day is like for me...hell! I have noticed in the last few weeks they seem more sympathetic towards my pain. FINALLY!!! So, take alot of time for yourself and do the little things in life like sit and watch the birds fly by, or watch the sunset but it sounds like work is too much for you and you really need to rest. I do understand how isolated you feel because I am the same way. I have been in bed for 21 months now and I kind of got used to it. My bed is like my tech center now. Everything revolves around it. I wish you the best of luck and vent to us here. We all have been in the same situation and if we help each other out we will all get through it together!!
Take care,
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Old 11-18-2006, 01:08 AM #8
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You know, Lisa, I was thinking about you last night when I was scooting down to the grocery store. Had to get some cat food for the herd before the storm came.

I was telling you "simple suppers" and "let the housework go". You were saying that your hubby does all that.

Yeah, but, you haven't given up the "responsibility" for all that. That's why you feel so guilty now.

Look at it this way, sugar. Your primary job now is to get yourself well. In loving-caring relationships, there'll be give-and-take like that. He'll do stuff now because he can and you can't. One day, when you get your balance back, you'll be able to do for him. What you do for him won't necessarily be the same type of thing that he does for you.

There's no scale that balances tasks. One dishwash here, one trash-take-out there. The balance is in the loving and the caring and in the heart.

You do your part -- get your balance back and get yourself into a position where you feel more able to cope. It all works out -- if you let the guilt go.

BIG HUGS.

Barb
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Old 11-18-2006, 02:41 AM #9
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Hi, Lisa. I'm on Effexor as well and it is one of the few meds I could tolerate. Recently my pain specialist added 75mg of Nortriptyline which has helped me feel much better. Just thought I mention this as an option.
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Old 11-19-2006, 03:39 AM #10
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Well, there we go, all different - I tried Zoloft a while back, it did zilch. I seem to be best on low dose Neurontin and a pot of coffee (yes, I know I shouldn't..), though I wish I could find something to bridge the gap some days....this forum cheers me up, though, thanks all of you for being part of it. Some days I just really need it, ya know?

all the best

Last edited by artist; 11-19-2006 at 06:21 AM.
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