NeuroTalk Support Groups - sympathetic nerve blocks?

NeuroTalk Support Groups (https://www.neurotalk.org/)

- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - sympathetic nerve blocks? (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/66219-sympathetic-nerve-blocks.html)

Hi my name is Paige and I'm 21, I have RSD/CRPS in my knee's and have done a lot of research about it. I came across Zoe Pearson's story of HBOT and decided to give it a go as every other treatment option has failed. I wondered as you have experience of the condition, the HBOT and have spoke with Zoe if you could shed some more light on it for me please? I'm currently trialling it and I guess I'm looking to speak to people who have/are experiencing the same thing as it is very difficult to find any support and information.
Thanks
Paige

Quote:

Originally Posted by ali12 (Post 430012)

Thank You Diana for your kind words :hug:!

Yes, I have heard about Zoe Pearson, she was actually treated for her RSD at the same hospital has me and is now a medical student training to specialise in RSD and other Chronic Pain Syndromes. I have spoken to her quite a bit although have never met her in person ... my PT's have also told me quite a lot about her and her story and success with HBO.

I am keeping the HBO in the back of my mind however when my mum spoke to my Doctor, he said that in my case, he really doesn't think it will help me. I don't want my mum spending that much money on me also if it isn't going to work but I guess if I never tried it, I would never know if it would work or not. A while back, we went to a HBO centre in Leeds (UK) and was due to start the HBO however I went onto the Intense Physical Therapy program about a week before I was due to start so we never got round to starting.

Here's Zoe's story for those of you that haven't seen or heard about it:

Thanks again!

Sorry meant to quote you Alison

Getting Lumbar Sympathetic Nerve Blocks keeps me working. BUT, getting them with Botox is CRUCIAL for me. Without that, the pain relief just doesn't last very long. With it, I am able to get by getting 4 annually.

Stanford can do Botox with LSBs. Call around and ask.... it is still a newer modality to add to the treatment.

FYI: I have had RSD for 4 years in my right foot. Spread to my left foot started a couple of years ago. I am sensitive on my calves but it hasn't spread beyond that.

Quote:

Originally Posted by *pamela* (Post 1139458)

I live in the UK so treatments aren't as accessible and i haven't heard of having it with botox. I have had the steroid injections, they made it worse so i am reluctant to try anything else in that area. Otherwise i've had physio, hydrotherapy, tens, lidocaine patches, deep tissue massage, pain relief including amitriptyline and pregabalin etc. I'm on session 19 of the HBOT so still yet to see if that helps