Originally Posted by ali12

Thank You Diana for your kind words !

Yes, I have heard about Zoe Pearson, she was actually treated for her RSD at the same hospital has me and is now a medical student training to specialise in RSD and other Chronic Pain Syndromes. I have spoken to her quite a bit although have never met her in person ... my PT's have also told me quite a lot about her and her story and success with HBO.

I am keeping the HBO in the back of my mind however when my mum spoke to my Doctor, he said that in my case, he really doesn't think it will help me. I don't want my mum spending that much money on me also if it isn't going to work but I guess if I never tried it, I would never know if it would work or not. A while back, we went to a HBO centre in Leeds (UK) and was due to start the HBO however I went onto the Intense Physical Therapy program about a week before I was due to start so we never got round to starting.

Here's Zoe's story for those of you that haven't seen or heard about it:



Thanks again!

Originally Posted by *pamela*

Getting Lumbar Sympathetic Nerve Blocks keeps me working. BUT, getting them with Botox is CRUCIAL for me. Without that, the pain relief just doesn't last very long. With it, I am able to get by getting 4 annually.

Stanford can do Botox with LSBs. Call around and ask.... it is still a newer modality to add to the treatment.

FYI: I have had RSD for 4 years in my right foot. Spread to my left foot started a couple of years ago. I am sensitive on my calves but it hasn't spread beyond that.