As I get worse with each passing day I just cant deal at times!! I dont know what to do with the greif I am feeling as I now lose function in my right arm/hand (started with feet-now upper body) . This is just too much! I started seeing a therapist and she does help- I know I should be focusing on what I CAN do and distracting myself yada yada but sometimes it just doesnt fly... I still think I will wake up from this F--nightmare!
Sorry so depressing but have to vent-
Will there ever be any real hope for us? Is there anyone really trying to figure this out?
again-sorry but just so sad tonite- I just want my little life back and not have to think about this all the time!

Debbie

ooh debs - big higs?? (wow brain is really working well! big hugs even)

I'm sorry this is gettin you really down babe. this disease is unfair, it is isolating and it is horrible.

All I wanted to say is I've been where you are now, and thngs do improve - maybe not in the way that you hope but they do. but so that you can have a quality of life despite the pain, disability and meuginess of RSD.

Hope for us? well..... only if drs learn to recognise it!! and start to research it enough!!

It is so hard to feel like you're losing the ability to do stuff and when you feel that life is hard enough already iwthout losing the use of your fingers. My worst part was watching it spread up through the limb, while drs went - ok the fingers have gone... now the wrist...now the elbow...

Anyway - here's hoping you have a better day today!

big hugs

Rosie xxxxx

Debbie, One of my arms and hands has hit the road on me. Ready for this. Come to Sweden with me. I will introduce you to the Doc who did my wonderful new makeover and have him join our bodies together side by side. My good arm and hand on one side yours on the other. WaaLaaa!! There you have it! I mean look at me!! I'm a real beauty! Now if I can just find size 15 shoes I'll be sporting! I'll even let you share my cocoanut bra with me. At this point I am a size 48DD.

I know I got you to at least smirk! It worked didn't it. Your laughing now aren't you! I knew I could do it.

Chin Up Sweetie! It will get better. Trust me. I been there. Try taking warm baths with lavender in it. I do not do that but my neighbor Jan has Fibro real bad and she says that helps her alot. If you try the tub thing she also says light just one candle and if you like music put on something mellow and keep the volume low but loud enough to hear. It helps to keep your mind off of concentrating on the pain. Just a thought. Aroma Therapy!!!!
Six foot fivers do not fit in tubs real well. So I guess that would leave me out.

Cybill xoxoxo

Debbie,
*HUG* all be it a super soft one....................we all hit those types of day sweetie so we know exactly what you mean. I have dasy where I want to just throw the towel in also.

Altho, now, *ROFLMAO* Mark has a pretty good idea going there..........whacha think????

*HUGS* softly again,
DebbyV

Thanks for your replies- I like marks answer- If we can all put our good parts together we would have a SuperManwOMAN-LOL