Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-21-2008, 03:53 PM #1
Iffynah Iffynah is offline
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Default Baby steps.

Went to the doctor on Friday. He still says not possible to be RSD. He scheduled an MRI. The nurse WC hired is working with my case adjuster to go around this doctor and get into a PM doctor. She said there is something wrong because of all the pain I'm in. I would have to be a good actress to be putting on a show for 10 months now. But she finally believes me that I'm not faking it and am truely in the amount of pain I'm in. So theres some good steps in the right direction. But I told her I'm fed up with the doctor and calling my lawyer. She asked if I would wait til she could get a hold of the adjuster to see what could be done to get away from this doctor. But at my appointment my arm was all red like a rash with purple blotches in it. It was freezing cold, he didn't even look at it. He only grabbed it felt it and put it down. I'm doing everything not to start screaming at him but maybe I should have. The doctors assistant came in and did the same thing, I backed away from him because I was standing. He got snooty with me and said okay fine and walked away. I told him I'm sorry but I hate it when you all grab my arm like that. It is extremely sensitive. But the doctor said if the MRI comes out negative he is releasing me to full duty. But the nurse says there are people with RSD that work normal jobs. My problem is, is I work fast food. I can't do that type of work anymore, and I dont have a college education. I can barely pick up my 1 year old, how could I do the job duties required. Oh and my OT says its time to have an EMG done but this doctor absolutely refuses to do one. Which didn't make the nurse WC hired happy but she says at least he is doing the MRI.
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Old 12-23-2008, 02:12 PM #2
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Go to another doctor ... A rehab specialist is good for diagnosing this. Once you get the diagnosis, you can get proper treatment. Best of luck to you. Joan
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Old 12-23-2008, 03:09 PM #3
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I'm sorry that your Doctor is being so awful to you, that isn't right. I agree with what Joan said, please go and get another doctor that will listen to you and not judge you if you can. It is SO important with this illness that you have a doctor that understands what RSD is and knows how to treat it!

I'm glad that the nurse WC hired is believing you now, that is great and I really hope she is able to help you and try and get things fixed. I'm also glad that you are getting the MRI scan done and hope that it will give you some much-needed answers.

Please keep us updated and if you can, try and get another doctor.
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Old 12-30-2008, 05:57 AM #4
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Next time you have to deal with this doctor, you should at least tell him "You know, when you do that it causes me incredible pain; could you be a little more gentle?" You need to let him know the severity of the discomfort that he is causing so that he a)gets it and b)hopefully documents it. At least then, he would feel like an *** doing it again after being told. Don't stop yourself from screaming, just don't do it at him. Ya gotta let him know.
Lori Lee
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