Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-22-2008, 10:23 PM #1
Iffynah Iffynah is offline
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Default A little confused

My OT told me today that she thinks I have CRPS. I asked her isn't that the same as RSD? She said its a type of RSD but in a category by itself under RSD. I thought CRPS was just the new name for RSD? Am I wrong? Also I was washing my hands at OT last week to have it dipped in wax, well the water got a little to hot. It burned my skin on my RSD (right) hand on the thumb. Its still redish pink. My OT says its cuz the nerve endings are messed up from my injury. Has anyone else ever experienced this?

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Old 12-23-2008, 12:02 AM #2
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She needs to go re-read her rsd/crps literature!! LOLOL CRPS is the "new" name for RSD. It is NOT a separate category! ROFL OMG.....just when you think you've heard it all! *rolls eyes* Pay no attention to that kind of misinformation.

The only "categories" under rsd/crps are named Type I and Type II - With and without nerve damage.

Oh my yes on the too hot water. I didn't start with touch sensitivity of any kind, just air and for certain things like steam or hot water never hurt. Well......of course everything changes and over the past 2-3 years I now have the joy of touch crud, air crud and I hate,hate,hate being so darn sensitive to water a bit too hot! Steam from a pot gets near my skin and I feel like I've been burned. Sometimes my skin will be reddish color too for a bit. The downside is other times I don't feel it when I cut myself, anywhere on my body! *sigh*

Hugs,

Karen
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Old 12-23-2008, 01:59 PM #3
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Agreed .. They are one and the same ... Any way you spell it, it is the same ...
I have the same sensitivity issues karen. Hate it too ... I hear ya!
Joan
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Old 12-24-2008, 08:36 AM #4
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Agreed...much like the internet as a whole, most of what you hear from subspecialties is should be taken with a grain of salt. I don't get too moved one way or the other unless someone has a real background or can show me something from a journal to back up their statements. If you want to look for info on the internet, sometimes it helps to add "medical journal" in the key words-filters out anything not really supported by medical evidence.
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