Quick question...

do any of you have these???

it's not from my meds - they're worse when my pain is worse but they're not me hyperventilating etc.. you can actually feel (apparently) that the muscles are in spasm..

I've started having much more frequent chest spasms (at least one a day) which have been lasting several hours making it almost impossible to breathe.. apparently my lips go blue and my skin goes grey whilst they're happening.. I can't talk and all I can concentrate on is trying to breathe.. my mother (who hates hospitals even more than I do! even though she's a nurse) actually considered calling an ambulance which has got to be a first.. (considering she just surrounds me with pillows/ soft stuff when I have dystonic storms and then apparently leaves the room).

If so what helps you?

much love

rosie xxxxx