Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-30-2008, 08:42 PM #1
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
MominPainRSD MominPainRSD is offline
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Join Date: Dec 2008
Posts: 264
15 yr Member
Default one month in...

Hello all!! I was diagnosed two weeks ago with CRPS by the surgeon who operated on my left ankle (after calling his office constantly the week before telling them how much pain I was in and having NO response. I WAS in excruciating pain then.....worse than labor.....like hot burning concrete pouring down my leg every time I stood up). I have had two different doctors since confirm the diagnosis, unfortunately.

I think I must have a relatively mild case so far.....my foot gets hot/cold, I have constant tingling, burning, electric shock type sensations in it, the incision is not healing well, I have terrible swelling and, of course, the foot/calf turns red (or blue) when I stand up. I am managing the pain primarily with Advil so far (at least for the past week.....determined to get off the pain pills).

I am married, have four children, and no friends where I currently live so am DESPERATE for someone to talk to about this. None of the doctors seem to know what they're doing and no one wants to mess with me. I am SUPPOSED to have my first sympathetic nerve block done if the Pain Specialist will call me back to schedule it.

Did anyone else out there have such mild symptoms as mine?? I am hoping it will go away without causing more damage. I have very little sensation about an inch around my incision on all sides and allodynia on the top of my foot. I am FORCING myself to sleep without a sock to desensitize the area. The discomfort is always with me, but I AM walking despite it, and grateful to be able to do so (usually without limping if I walk VERY slowly--my PT will be proud of me!!).

ANY feedback would be greatly appreciated. I feel so alone and am scared about all of the information out there on this. I am assuming I am a month into the disease at this point (tomorrow is the four week mark of my surgery.....my symptoms started three days later). Thanks to all who read this!!

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