Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-07-2009, 05:53 PM #11
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DianaA DianaA is offline
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Default I'm praying for you!

Mominpain,
Back in the day LOL, we got 10 blocks, 1 a day for ten days in a row. They gave me Verset(sp?), which I was very thankful for. I had stelate ganglion blocks, so they were in my neck. I did get relief. As I have said before it was a vacation for a while from the pain. I have also read of great results from blocks. I think treatment is very individual. I am thankful you are getting some relief.
Do you know how happy we will all be hear you get good results from the blocks? You are off to a good start with some improvement. I'm praying that you continue to see results that favor healing. Keep open and positive. You have a great attitude and I'm sure it will carry you through to the final results. Here's to your recovery! You are in my thoughts and prayers during this time. Love Di
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Old 01-07-2009, 11:35 PM #12
loretta loretta is offline
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Hi Diana and MominPainRSD,

I feel the same way about both of you. You are both such positive, kind, and compassionate friends, always trying to encourage others. I know you have both helped me in a positive way.
I do hope today's block goes so well with you. I think I mentioned to you that my Doc feels me being on an anti=anxiety med, Lorazepam 2 mg. 3xday is a good thing to keep my sympathetic system calm. Have either of you ever been to a biofeedback clinic?
I attended a class at one of the local hospitals. It's a wonderful way, without use of meds to learn our bodies responses to stress etc. and learn different ways to relax different parts of our bodies. That was about 25 years ago and I still use the technique.
Hope your dives are going well Diana. My Dr. is getting a two person chamber for each of his two new clinics. I'm looking forward to trying HBOT in a month or two.
I'm about a week away from going off Lyrica. If I don't have any spams, jolts, jerks, etc. I'll be very grateful. It's been a very slow process in going down on dose amount.
MominPain, please let us know as soon as your up to it, how today's block went.
Thinking of you and Diana always, Loretta
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Old 01-08-2009, 03:45 AM #13
MominPainRSD MominPainRSD is offline
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Quote:
Originally Posted by loretta jewell View Post
Hi Diana and MominPainRSD,

I feel the same way about both of you. You are both such positive, kind, and compassionate friends, always trying to encourage others. I know you have both helped me in a positive way.
I do hope today's block goes so well with you. I think I mentioned to you that my Doc feels me being on an anti=anxiety med, Lorazepam 2 mg. 3xday is a good thing to keep my sympathetic system calm. Have either of you ever been to a biofeedback clinic?
I attended a class at one of the local hospitals. It's a wonderful way, without use of meds to learn our bodies responses to stress etc. and learn different ways to relax different parts of our bodies. That was about 25 years ago and I still use the technique.
Hope your dives are going well Diana. My Dr. is getting a two person chamber for each of his two new clinics. I'm looking forward to trying HBOT in a month or two.
I'm about a week away from going off Lyrica. If I don't have any spams, jolts, jerks, etc. I'll be very grateful. It's been a very slow process in going down on dose amount.
MominPain, please let us know as soon as your up to it, how today's block went.
Thinking of you and Diana always, Loretta
You ladies are such sweethearts!! I cannot tell you how much it means to me to have people that care about me! This forum has been such a wonderful support to me!!

I DO think this injection has helped! I just PULLED my sock on my foot without thinking about it! The ants have quit biting my toes and my foot doesn't "feel" cold to me!! I am actually lying in bed with the covers on it moving my toes around!!! My ankle is still stiff and swollen but I will work with it tomorrow with PT and epsom salts.

I was SO sick yesterday, however. I feel almost like I'm going through chemo (PLEASE forgive me to anyone out there that HAS gone through chemo......I'm sure I cannot even imagine how that feels). I get so sick from these injections and have an allergic reaction to something they give me. I break out in this horrible red, itchy rash every time, despite them having given me a "buttload" (as the nurse said) of Benadryl in my IV. The doc is not concerned about it since I'm not having trouble breathing as well. It's still a pain and miserable. I wasn't able to eat anything yesterday but some dry Cheerios because of the nausea...so I feel weak and dizzy now. PLUS, he started me on Lyrica last night. I am very, very sensitive to meds and have a really hard time adjusting to changes with them.

I've also been put on Skelaxin during the day to help with the tremors and twitching (which drive me nuts). I've only taken one dose so far so I don't know yet how it will help. They told me it wouldn't make me sleepy like the Flexeril does (which I take at night). I HATE that "drugged" feeling. That is primarily why I deal with the pain as much as I can during the day with Advil. They offered me Percocet and I declined.

That all being said, I have a question to all on Lyrica. The med info says that I cannot drink any alcohol on that med. I enjoy a nice glass of Cabernet or Merlot in the evening sometimes.....especially if it's been a particularly stressful or painful day. Do I have to completely stop that???

I cannot remember whether I posted anything about my injection yesterday or not. They had me on SO much stuff......I remember little and was SO sick all day. Get this......the hospital I went to (a different one from the last time) had NO numbing meds for the IV. No topical, no injection. They poked me THREE times with the IV needle before they could get one in. I was livid. I told the doc point blank that he needed to make sure that numbing meds were available to me before my next injection at that hospital (next Wednesday). I was still tense and upset (and about to pass out) about the IV when 2 minutes later they walked me into the room for my injection. I was wide awake for the whole thing this time.....remember and felt the whole darn procedure. Holy cow they go in deep!! I told him I want more meds the next time.

My foot turned blue and purple afterwards but the temperature went up in that foot and he saw it and said that was a good sign of increased blood flow!!! I really think these are working for me!!!! I'm wiggling my foot around and have very little pain (of course, I did just take a Vicodin a while ago.....they said no Advil for 24 hours after).

So, I am excited to keep you all posted. I can tell you one thing......I feel totally connected and compassionate for everyone that suffers from this disease. I want to educate myself as much as possible and do anything I can to educate others as well. I've even sent an email to a former friend, whom I've had a falling out with, who is a teaching nurse at a local University, telling her about the disease and imploring her to research and speak about it with her nursing colleagues and students. I will forever do whatever I can to raise awareness and support for us!! I actually believe this is one of my callings in life.

Best wishes to everyone! I hope you all are sleeping peacefully! I find myself wide awake at 3:40am after going to bed at 8 last night.....but hopefully I can grab a nap sometime. Take care!!!
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Old 01-16-2016, 12:26 AM #14
Poncel13 Poncel13 is offline
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Hi I just joined and I'm not sure how to post on here I have a question I just had 6 nerve blocks and I have some questions to see if people have experienced anything I have
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Old 01-16-2016, 10:53 PM #15
mama mac mama mac is offline
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Go to the top of the main page and hit new thread. That will allow you to introduce yourself and ask questions or make comments about your situation. Looking forward to meeting you ~mama mac
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