NeuroTalk Support Groups - 2nd sympathetic block success!

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- Reflex Sympathetic Dystrophy (RSD and CRPS) (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/)

- - 2nd sympathetic block success! (https://www.neurotalk.org/reflex-sympathetic-dystrophy-rsd-and-crps-/68802-2nd-sympathetic-block-success.html)

Hi MominPainRSD, (again) I pushed the wrong buttom! it's late. Anyway, hope you sleep well too. Let us know what the Doc says. I'm so sorry you are going thru this, just really hope it doesn't spread. Take care, Loretta

Thanks Loretta.....yes.....big toe still hurts.......around the first joint.......hurts to touch anything or slightly push on it.......stays white for a LONG time when I do. I will call the doc today and leave a message for him. Thanks, as always, for your concern. How are your lesions healing up???? Do they still hurt you???? Take care of yourself!!

Quote:

Originally Posted by MominPainRSD (Post 441057)

I actually wrote this in the middle of the night but it was buried in an old thread. I wanted to update everyone on how my 2nd injection went. I am still allodynia improved.....was able to rub lotion on my foot this morning!!! I've been up and around with little repercussions. I have almost as much flexibility in my left foot as I do my right one!!! I feel very encouraged!! I'm having TERRIBLE headaches that I think may be from the Lyrica/Skelaxin they started me on yesterday. I hope I adjust soon. I see my new neurologist today so I'm slowly building my "team" of doctors. I hope everyone is doing well. Sorry for all who end up reading this twice. There are some questions in here that I was hoping you all could answer for me. Again, I wrote this in the middle of the night on a LOT of meds, so forgive my rambling........Take care!!!!

I DO think this injection has helped! I just PULLED my sock on my foot without thinking about it! The ants have quit biting my toes and my foot doesn't "feel" cold to me!! I am actually lying in bed with the covers on it moving my toes around!!! My ankle is still stiff and swollen but I will work with it tomorrow with PT and epsom salts.

I was SO sick yesterday, however. I feel almost like I'm going through chemo (PLEASE forgive me to anyone out there that HAS gone through chemo......I'm sure I cannot even imagine how that feels). I get so sick from these injections and have an allergic reaction to something they give me. I break out in this horrible red, itchy rash every time, despite them having given me a "buttload" (as the nurse said) of Benadryl in my IV. The doc is not concerned about it since I'm not having trouble breathing as well. It's still a pain and miserable. I wasn't able to eat anything yesterday but some dry Cheerios because of the nausea...so I feel weak and dizzy now. PLUS, he started me on Lyrica last night. I am very, very sensitive to meds and have a really hard time adjusting to changes with them.

I've also been put on Skelaxin during the day to help with the tremors and twitching (which drive me nuts). I've only taken one dose so far so I don't know yet how it will help. They told me it wouldn't make me sleepy like the Flexeril does (which I take at night). I HATE that "drugged" feeling. That is primarily why I deal with the pain as much as I can during the day with Advil. They offered me Percocet and I declined.

That all being said, I have a question to all on Lyrica. The med info says that I cannot drink any alcohol on that med. I enjoy a nice glass of Cabernet or Merlot in the evening sometimes.....especially if it's been a particularly stressful or painful day. Do I have to completely stop that???

I cannot remember whether I posted anything about my injection yesterday or not. They had me on SO much stuff......I remember little and was SO sick all day. Get this......the hospital I went to (a different one from the last time) had NO numbing meds for the IV. No topical, no injection. They poked me THREE times with the IV needle before they could get one in. I was livid. I told the doc point blank that he needed to make sure that numbing meds were available to me before my next injection at that hospital (next Wednesday). I was still tense and upset (and about to pass out) about the IV when 2 minutes later they walked me into the room for my injection. I was wide awake for the whole thing this time.....remember and felt the whole darn procedure. Holy cow they go in deep!! I told him I want more meds the next time.

My foot turned blue and purple afterwards but the temperature went up in that foot and he saw it and said that was a good sign of increased blood flow!!! I really think these are working for me!!!! I'm wiggling my foot around and have very little pain (of course, I did just take a Vicodin a while ago.....they said no Advil for 24 hours after).

Take care everyone!! I hope everyone has a pain-managed day!!!!

I took neurontin for several days, horrible indigestion. Lyrica worked well but made me tired and (more) stupid. I did however, enyoy an occasional glass of chardonney without apparent issues. It is contraindicated though. Unrelated, I had to stop the Lyrica after several weeks as it caused arrythmias.

Thanks Dubious!!! I sent you a PM. Look on the top right hand corner under your forum name and you'll see the box (above your mood) for your private messages. Sorry if you already knew this......I am new to forums and am still trying to figure things out!! Take care!! Thanks for the reply!!!

Hi my name is Kim and I'm not sure where to start on this website. I also have RSD mine started in my left leg and is now through my whole body. I have 2 implanted electric stimulators and have 3 more to go yet. I know the pain your talking about and would like to see if anyone here can help me on some information to help me out with all this. I hope I can also help some of you out on any questions you have. Thanks an I hope to talk to you all soon.
Kim

Quote:

Originally Posted by dalejr88rulesall (Post 442661)

Hi Kim!! You have found a wonderful forum here with lots of intelligent, caring, informed people! My suggestion would be to start a new thread and ask away with any questions you may have. More people reply to new threads than they bother to check the older ones (unless they've subscribed to it and get updates to their regular email as I do). I've only had RSD for 5 weeks or so, so I am new to all of this. I am still in the sympathetic nerve block stage, so haven't had any stimulators or any other radical pain relief measures taken.

Again, everyone here is willing to help, LOVES to respond and reach out to "newbies", and is genuinely caring. I look at us all as a "team". How long have you had your RSD??? Mine, too, started in my left ankle as a result of surgery. Are they implanting so many stimulators to try to reach all four body quadrants?? Are the ones you already have helping to manage your pain??? Many of the members here also have it full body, so I'm sure you'll get a lot of info and support from them.

Try posting a new thread (if you have trouble doing that, let me know.....I'll be up for a while) and ask any questions you may have. It may take until tomorrow to get a lot of responses, but several of the members are on the West Coast so may still be up and on line.

Best wishes to you and welcome!!! I'm so sorry you understand the pain I/we experience, but I am genuinely glad you found this forum to help you get questions answered and support (and no, I don't get any kickbacks for saying that!! ). Hope to talk to you soon!! :hug: