Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-19-2009, 02:34 PM #13
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Jodee Jodee is offline
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Join Date: Feb 2008
Location: Buffalo NY
Posts: 34
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I personally know a couple of people with the scs. I have heard from my pain management doctor who also teaches on the scs that it is often better to do early in treatment, but not always the case. One person who is a close friend had the scs put in about six months ago, and it has caused the spread, funny cause the trial she did wonderful with. I also know of someone else in a local support group who was wheel chair bound. Got the scs and is now able to walk. I personally would not get one, but then again my pain is almost non now. I could not take neurontin had a allergic reaction ended up in the er, so therefore will never try lyrica since its a sister drug. Keppra at first which is another med they use off label i used and it worked good. I hope you find what works for you.

Jolene
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