Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)

 
 
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Old 01-24-2009, 05:45 PM #20
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lostmary lostmary is offline
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Join Date: Apr 2007
Location: fredericksburg, Virginia
Posts: 459
15 yr Member
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I had my new PM doc say the same thing to me when I saw him last month. He asked me what I wanted him to do for me. He said that unless I wanted to try the scs again (I've had 2 and the last one,well long story), there wasn't anything he could do for me. If I just wanted him to give me pain meds for the next 20 years or so, (I corrected him, I told him at least 30 or more....how dare he). he didn't have a problem doing that. Didn't suggest PT or anything. I just found out that my younger sisters' sister in law has had rsd for almost 15 years. I talked to her yesterday and it was great to talk to someone who is a nurse, and knows a lot about rsd. She has a pain pump and has had it for quite a few years and loves it. Because of all my infections, she doesn't recommend it for me just yet, but maybe down the line. I'm resigned to staying on drugs forever. I just think for having to do this that we should at least get some enjoyment out of it. I don't understand why people want these things, they do nothing for me but take the edge off the pain. I just discovered that the toes on my left foot, which is where rsd started have started to curl under now. Oh well, one good thing, I guess my shoe size will get smaller

hugs
Mary
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