Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


advertisement
Reply
 
Thread Tools Display Modes
Old 01-31-2010, 07:23 PM #1
rsdfree rsdfree is offline
Junior Member
 
Join Date: Jun 2009
Posts: 7
15 yr Member
rsdfree rsdfree is offline
Junior Member
 
Join Date: Jun 2009
Posts: 7
15 yr Member
Default Dr. Rhodes in Corpus Christi.

Quote:
Originally Posted by possum View Post

Howdy from unfortunately an old school RSD CRPS vet (although we have done much better than so many others we have know, so i am thankful). For reasons i can't go into we lost our old doctors. Does anyone know any doctors in Houston, or anywhere else in Texas, with good RSD experience that they can recommend to take over treatment?

Thanks more than you can ever know.

Wishing y'all peace, love, and pain-relief,

Possum
Dr. Rhodes has been successfully treating RSD/CRPS and other neurological disorders for 17 years. Depending on your condition, it can take some time, but he is just now getting prototypes of a new machine (an update over his previous machine) that is faster, better, and cuts down on return trips for updates. His treatment is non-invasive. I am one of his grateful patients.
rsdfree is offline   Reply With QuoteReply With Quote
Old 01-31-2010, 08:53 PM #2
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Default

Quote:
Originally Posted by possum View Post

Howdy from unfortunately an old school RSD CRPS vet (although we have done much better than so many others we have know, so i am thankful). For reasons i can't go into we lost our old doctors. Does anyone know any doctors in Houston, or anywhere else in Texas, with good RSD experience that they can recommend to take over treatment?

Thanks more than you can ever know.

Wishing y'all peace, love, and pain-relief,

Possum
DEFINITELY check out Dr. Krusz. He is in Dallas, a Neurologist and totally thinks outside of the box. He specializes in Ketamine and other infusions and his office is in a house vs. a medical building (they think that promotes a more relaxed environment). I just got back from a 4 day Ketamine infusion and I can't say enough about their entire staff. In fact, I spent over 2 hours with Dr. Krusz during the initial consultation. His phone number is 877-4pain44. It was very easy to make an appointment. However, they don't accept most insurance so you'll have to pay out of network...it's totally worth it though! This man is brilliant, compassionate and wants to help.
Tiff is offline   Reply With QuoteReply With Quote
Old 01-31-2010, 09:52 PM #3
momw/rsdchild's Avatar
momw/rsdchild momw/rsdchild is offline
Junior Member
 
Join Date: Jan 2010
Posts: 20
10 yr Member
momw/rsdchild momw/rsdchild is offline
Junior Member
momw/rsdchild's Avatar
 
Join Date: Jan 2010
Posts: 20
10 yr Member
Default

Dr. Krusz is my and my daughter's doctor!! I was just going to recommend him. He is absolutely amazing. Many of you know we just moved to Oklahoma and I have been looking for a doc closer to us but alas we have been making the drive back down to Dallas because Dr. Krusz is so amazing! We both have had great results with the ketamine infusions too!
momw/rsdchild is offline   Reply With QuoteReply With Quote
Old 01-31-2010, 10:36 PM #4
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Default

Quote:
Originally Posted by momw/rsdchild View Post
Dr. Krusz is my and my daughter's doctor!! I was just going to recommend him. He is absolutely amazing. Many of you know we just moved to Oklahoma and I have been looking for a doc closer to us but alas we have been making the drive back down to Dallas because Dr. Krusz is so amazing! We both have had great results with the ketamine infusions too!
Small world!! I just wish the ketamine worked for me.

I work for a major hotel brand and there is one located right down the street from his Dallas office. I can get you the friends and family rate the next time you go down there if you'd like...if you are interested just let me know. Thanks.
Tiff is offline   Reply With QuoteReply With Quote
Old 02-01-2010, 01:59 AM #5
momw/rsdchild's Avatar
momw/rsdchild momw/rsdchild is offline
Junior Member
 
Join Date: Jan 2010
Posts: 20
10 yr Member
momw/rsdchild momw/rsdchild is offline
Junior Member
momw/rsdchild's Avatar
 
Join Date: Jan 2010
Posts: 20
10 yr Member
Default

Wow Tiff! That would be amazing! We just spent a week there the week before last getting the ketamine infusions for my daughter. They didn't work this time and she is still in pain. I am calling them tomorrow to see what we need to do next. The hotel gets pretty expensive after a while. I don't have RSD but I have a bladder disease that is kind of like RSD in the bladder. I started seeing Dr. Krusz almost 2 years ago and talked to him about my 15 year old daughter who has RSD. She has been seeing him about 6 months now. After her first visit to him she walked out saying "Wow! He is brilliant"!
momw/rsdchild is offline   Reply With QuoteReply With Quote
Old 02-01-2010, 07:50 PM #6
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Tiff Tiff is offline
Junior Member
 
Join Date: Dec 2009
Location: Texas
Posts: 28
10 yr Member
Default

Quote:
Originally Posted by momw/rsdchild View Post
Wow Tiff! That would be amazing! We just spent a week there the week before last getting the ketamine infusions for my daughter. They didn't work this time and she is still in pain. I am calling them tomorrow to see what we need to do next. The hotel gets pretty expensive after a while. I don't have RSD but I have a bladder disease that is kind of like RSD in the bladder. I started seeing Dr. Krusz almost 2 years ago and talked to him about my 15 year old daughter who has RSD. She has been seeing him about 6 months now. After her first visit to him she walked out saying "Wow! He is brilliant"!
I said the exact same thing! I was there the week before you. Too bad we missed each other...maybe next time. I'm sorry to hear about your bladder problem as that can't be fun. I'm new to this whole board but feel free to pm me and I will give you directions on how to get the discount. It's very easy! Thanks.
Tiff is offline   Reply With QuoteReply With Quote
Old 02-25-2010, 01:33 PM #7
klmullican klmullican is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
10 yr Member
klmullican klmullican is offline
Junior Member
 
Join Date: Feb 2010
Posts: 8
10 yr Member
Default Question about your daughter

Hi! I just got Dr. Krusz's name from Dr. Schwartzman's office in PA. I had called to see if they knew anyone in Houston or Texas. My 16-yr-old son was diagnosed with RSD in November. He's had two nerve blocks which were successful but only lasted a few days the first time and almost a week the 2nd time, which was 2 weeks ago. But his pain took longer to come back each time and wasn't as severe. It was off the scale before, and he was taking 8 Vicadin a day and Neurontin. I was wondering if you would mind sharing info about your daughter. Did she have any nerve blocks and were they successful at all? I'm so sorry to hear that the ketamine infusions didn't work! Also, are you all closer to Dallas? I sure would like to find someone who does that in Houston. Sam's pain management dr. is an anesthesiologist at the Baylor Clinic of Pain in the Neurology Dept. We like him a lot, and he may do ketamine infusions. We go see him again this Friday.
Thanks for any info you wouldn't mind sharing.



Quote:
Originally Posted by momw/rsdchild View Post
Wow Tiff! That would be amazing! We just spent a week there the week before last getting the ketamine infusions for my daughter. They didn't work this time and she is still in pain. I am calling them tomorrow to see what we need to do next. The hotel gets pretty expensive after a while. I don't have RSD but I have a bladder disease that is kind of like RSD in the bladder. I started seeing Dr. Krusz almost 2 years ago and talked to him about my 15 year old daughter who has RSD. She has been seeing him about 6 months now. After her first visit to him she walked out saying "Wow! He is brilliant"!
klmullican is offline   Reply With QuoteReply With Quote
Old 05-05-2014, 08:20 AM #8
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Allanira Allanira is offline
Member
 
Join Date: Feb 2013
Location: NM
Posts: 318
10 yr Member
Default

Dr Jeffrey Annabi in El Paso. He's who I go to and I really like him. He's open helpful and doesn't push anything on you. You do have to give a urine sample to prove you're not on anything not prescribed or illegal drugs though. He's the first Dr that I've been to that really wants to help.
Allanira is offline   Reply With QuoteReply With Quote
Old 03-16-2011, 05:26 PM #9
BRIDGETD BRIDGETD is offline
New Member
 
Join Date: Mar 2011
Posts: 1
10 yr Member
BRIDGETD BRIDGETD is offline
New Member
 
Join Date: Mar 2011
Posts: 1
10 yr Member
Default looking for good doctor

Quote:
Originally Posted by momw/rsdchild View Post
Dr. Krusz is my and my daughter's doctor!! I was just going to recommend him. He is absolutely amazing. Many of you know we just moved to Oklahoma and I have been looking for a doc closer to us but alas we have been making the drive back down to Dallas because Dr. Krusz is so amazing! We both have had great results with the ketamine infusions too!
Hi,
I saw your post on neurotallk and am trying to find a good doctor to help my friend's daughter. Her left leg calf muscle has been atrophying for 4 months. It is now 1 inch smaller than the right leg. Her right leg is in a lot of pain. There is a noticable temperature difference between her right and left leg. She still hasn't gotten a diagnosis after an EEG of muscle and nerves, several MRIs, and many blood tests. Her pediatrician is saying that it might be RSD...any suggestions? She is in a stroller at 7 years while at the zoo because her leg pain is so severe.
Thank you for your time,
Bridget
BRIDGETD is offline   Reply With QuoteReply With Quote
Old 05-22-2012, 06:23 PM #10
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
LIT LOVE LIT LOVE is offline
Magnate
 
Join Date: Mar 2010
Posts: 2,304
10 yr Member
Default

Quote:
Originally Posted by BRIDGETD View Post
Hi,
I saw your post on neurotallk and am trying to find a good doctor to help my friend's daughter. Her left leg calf muscle has been atrophying for 4 months. It is now 1 inch smaller than the right leg. Her right leg is in a lot of pain. There is a noticable temperature difference between her right and left leg. She still hasn't gotten a diagnosis after an EEG of muscle and nerves, several MRIs, and many blood tests. Her pediatrician is saying that it might be RSD...any suggestions? She is in a stroller at 7 years while at the zoo because her leg pain is so severe.
Thank you for your time,
Bridget
With a child, they have the best chance for remission, but the best rests seem to come from inpatient RSD programs at one of the Children's hospitals, and I don't believe I've ever heard of one in TX. Either search the forum or start a new thread with a title that alerts you're looking for a child. Good luck.
LIT LOVE is offline   Reply With QuoteReply With Quote
Reply

Tags
rsd crps houston texas


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Looking for a good surgeon - Houston TX. chestw Thoracic Outlet Syndrome 14 06-19-2008 07:22 PM
What makes a good doctor in your opinion? dllfo Social Chat 10 03-22-2008 05:17 AM
Good Doctor Bad Doctor!! AZjanie The Stumble Inn 11 03-18-2008 07:31 PM
Need to find GOOD DOCTOR around Katy texas!!! Motors Mommy Classifieds 1 03-14-2008 02:20 PM
Article from Houston Chronicle on Texas Nerve Surgeons Triste Thoracic Outlet Syndrome 3 11-22-2006 08:57 AM


All times are GMT -5. The time now is 04:55 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.