Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-20-2009, 05:44 PM #1
Lonehunter21 Lonehunter21 is offline
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Default Besides Pain Meds?

I recently had a follow up app. with my surgon, who operated on my left ankle on Oct of last year. I had ankle reconstruction surgery. I also suffer from RSD, which over the summer calmed down enough surgery became somewhat of an option. Being my only choice I said I wanted to go through with it. Now almost 3 months into it I'm still taking Oxycodon (sp?). I asked for a new script and he gave me this "speach" about still taking the pills and fear of addiction. But he gave me the ok to start PT and with the amount of pain I am still in I felt it was needed for me to get a new script, which I eventually did. He suggest that I get in contact with my neurologist to see if there is anything he can do for me or something else he can have me take instead of a pain killer. I'm sure there are other options out there, I'm just looking for some information to bring to the table for when I eventually seee my neurologist.
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Old 01-20-2009, 06:37 PM #2
MominPainRSD MominPainRSD is offline
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Quote:
Originally Posted by Lonehunter21 View Post
I recently had a follow up app. with my surgon, who operated on my left ankle on Oct of last year. I had ankle reconstruction surgery. I also suffer from RSD, which over the summer calmed down enough surgery became somewhat of an option. Being my only choice I said I wanted to go through with it. Now almost 3 months into it I'm still taking Oxycodon (sp?). I asked for a new script and he gave me this "speach" about still taking the pills and fear of addiction. But he gave me the ok to start PT and with the amount of pain I am still in I felt it was needed for me to get a new script, which I eventually did. He suggest that I get in contact with my neurologist to see if there is anything he can do for me or something else he can have me take instead of a pain killer. I'm sure there are other options out there, I'm just looking for some information to bring to the table for when I eventually seee my neurologist.
Hi there!! I would request that he refer you to a Pain Specialist.....preferably one that has dealt with cases of RSD before. They are more aware of the degree of pain that RSD causes and may be willing to work out a plan with you to continue your meds to allow you to do PT. Studies have shown that people in genuine pain do NOT tend to abuse their meds.....they simply want relief from the pain. Given that RSD is the most painful of ALL chronic pain conditions, that is a legitimate need.

The neurologist may prescribe you Neurontin or Lyrica.....both of which are good for neurological pain (the jabbing, stabbing, aching, tingling pain that tends to affect those with RSD). That would help you not need so much of your other pain meds, which would be a win win situation all the way around! Please keep in touch and tell us how your appointment goes!!

http://anesthesia.stanford.edu/pain/...%20Options.pdf

I cannot remember if I posted this link before, but it contains some good info. about general treatment of RSD.
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"Thanks for this!" says:
Dubious (01-20-2009), sue k (01-22-2009)
Old 01-20-2009, 10:45 PM #3
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Thanks, "Mom," great article!
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