Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 01-23-2009, 08:52 AM #11
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Could someone please tell me how to read on when a post is cont.????

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Old 01-23-2009, 10:59 AM #12
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Hi Again,

The lyme was in my system so when I fell I went into RSD. You can get it from a flea bite. An MD suggested Lyme, but I could't believe it at the time. They didn't treat it either.

I ended up having rough Cardio SX was DX with Cellulitis/Staph. I had Endocarditis.

I started feeling stronger and better after the IV's.

Then I went South again, I decided to read up some on Lyme. I knew I had to find a LYME LITERATE MD.

That's what I did.

The pain started reversing itself. Much Love, Roz

Last edited by buckwheat; 01-23-2009 at 11:38 AM.
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Old 01-25-2009, 07:45 AM #13
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Mad Sorry for the second time around

I may have posted this under another thread, but it is totally true for this as well. I am an ICU RN at a large university hospital which is currently number 7 or 9 (can't recall this year) in receiving research funds from the US govt (NIH). I asked one of the professor/attending doctors about this and this is what he told me.
"The last disease that has been "cured" in the world essentially was polio. Do you know why there is no research to cure anything? Because there is no money in it. Treatment is ongoing and generates income. Cure ends the billing cycle forever."
This is nauseating, but true. Sorry to say that if you think about it, curing disease is something we never hear about unless it's the people effected "Search For The Cure" t-shirts, etc. Not so much in research.
Lori Lee
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Old 01-25-2009, 08:59 AM #14
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Quote:
Originally Posted by llrn7470 View Post
I may have posted this under another thread, but it is totally true for this as well. I am an ICU RN at a large university hospital which is currently number 7 or 9 (can't recall this year) in receiving research funds from the US govt (NIH). I asked one of the professor/attending doctors about this and this is what he told me.
"The last disease that has been "cured" in the world essentially was polio. Do you know why there is no research to cure anything? Because there is no money in it. Treatment is ongoing and generates income. Cure ends the billing cycle forever."
This is nauseating, but true. Sorry to say that if you think about it, curing disease is something we never hear about unless it's the people effected "Search For The Cure" t-shirts, etc. Not so much in research.
Lori Lee
Dear Lori Lee,

You have so much intergrity, and very bright as well. I thank you from the bottom of my heart for replying. I hope and pray your life will be blessed abundantly. Much Love, Roz
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Old 01-27-2009, 01:57 AM #15
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I hope that you really mean that-I mean, it's depressing and disgusting, but it is what he said and it does bear out that you haven't heard of any cure come out of medical research for years and years. We have more that 200 drugs to treat hypertension. Drugs make money and cause MD visits regularly. The magic wand of cure sends a patient merrily on his way. It's a little sick. You would think that humans would be above this.

However, I am loathe to post such a depressing thing, especially when the board is filled with people who need a little hope and faith that the system will work for them.
I love my job and moarn that I am not nursing currently. I deeply miss my patients in the neuro ICU and feel so useless without all of the running around and frustrations that go with the job. I am just one of those people who couldn't do anything else but be in the ICU. Knowing that medical research feels this way is a black eye to a profession that I am normally fairly proud of.
Lori Lee
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Old 01-28-2009, 12:43 PM #16
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Hi Lori Lee,

YES, I 100% meant everyword I said.

I am just a hairdresser, but what they saw is what they got. But this is NOT true in the medical profession.

I have also heard the Neuro. MD's can be like turtles and leave their eggs after any OR procedure.

You are a very lovely kind person. Much Love, Roz xoxo
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Old 01-29-2009, 03:20 AM #17
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Quote:
Originally Posted by buckwheat View Post
Hi Lori Lee,

YES, I 100% meant everyword I said.

I am just a hairdresser, but what they saw is what they got. But this is NOT true in the medical profession.

I have also heard the Neuro. MD's can be like turtles and leave their eggs after any OR procedure.

You are a very lovely kind person. Much Love, Roz xoxo
You are NOT just a hairdresser! If you take pride in your work, don't say it like that! Did you know that dermatologists stop at care accidents and hassle my husband (a paramedic) because "I'm a doctor." God help us all. Maybe he can treat the scars. We should all feel our jobs are worthwhile-right now, I can personally say that I desperately need you!
I only added the part about my job because with the rest of what I wrote, I also wanted to remind people that there are medical people out there who are caring and continue to be caring even after the new diploma wears off.

My patients need me, but sometimes I need my patients. I had one very special patient who came from across the country for resection of a brain tumor in the center of his brain through his nose (we do this where I work). Long story short, he and I became buddies for his stay. However, once he left the ICU I had no clue what happened to him or how he did. One day someone yells down the hall that someone is in the hall and wants to see me. I'm thinking the worst. There he stands with his wife looking healthier than anyone should. He was a bicycling enthusiast before, but was now biking 90 miles a day (hello-never in my life have I biked that long combined!) He gave me a card with a long letter inside. I carry it to work and sometimes read it when I feel that I'm not doing anything special or good enough, or we lose a patient.
Anyway, I needed to add that because I know that everyone on this board could write a book about crappy response from the medical profession. I could too, I just don't admire them based on only their academic accomplishments (graduating) and am free to tell them what only runs through the heads of others. Imagine being responsible for making sure that no doctors break patients while they learn-HELLO. (Any doctor is used to nurses being critical, bitchy, and downright confrontational when it comes to patient care and I'm not there to shore up their self-esteem during their residency. They don't even bat an eye.) They have to prove to me that they're good and they should have to do the same to y'all.
So remember the "I stop at emergency scenes because I'm a doctor"-haven't-touched-a-patient-in-twenty-years specialist and be proud of what you do. You're only "just" a hairdresser if you really do't give a **** about how well you do, and I doubt that's true!
Lori Lee
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Old 01-29-2009, 12:47 PM #18
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Dear Laura Lee,

I HAVE owned a very successful hair salon, usually had 6 ladies working for me. I did hairdressing for 20 years, I really know CREATIVE thinking!!!

Like I've mentioned before, I had 30 Neurologists DX me with RSD. I was dragged to at least 100 MD's all together.

I used to have pain off the charts, my pain levels are now no more than a 1.

I promised GOD if I got out of pain I would help people.

My MD I see, has a waiting list to get on the waiting list.

Do you know why you have RSD???

Big Hugs, Roz
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Old 01-29-2009, 12:51 PM #19
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I wish I could mail you my head and have you do my hair Roz, then send it back.

Good caring hairdressers, who know how to handle problem hair are hard to find.

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Old 01-29-2009, 01:39 PM #20
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Hi Curious,

You know I am trying to be serious on this thread. Make sure your hairdresser stands in front of you, and make sure she knows exactly what YOU WANT. She should know 100% now to do it way before any scissors are picked up as well.

But anyway thanks for a
good laugh.

Much Love, Roz
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