Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 12-01-2006, 11:51 AM #1
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Default Has Anyone Ever taken

Meloxicam? The name brand for that is Mobic? It is for arthritis type pain, and my dr put me on it because my egs were so bad.. I read some about it on the web, and the side effects, which I hope I don't experience, sounds kind of dangerous..

I was just wondering if anyone could give me first hand experience?

Janet
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Old 12-01-2006, 01:31 PM #2
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oh...i forgot to answer thst....no, i've never even heard of that. Please do let us know how it works, though!
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right Side TOS Decompression Surgery 12/2005
RSD Exacerbated after surgery
Still have TOS on left side
RSD On right side, currently in hand, forearm (underside), shoulder, chest, to hollow of throat, and in left hand creeping up into left wrist
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Old 12-01-2006, 10:57 PM #3
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Hi Janet,

No. I haven't heard of it either, but I'll be very interested to hear if you think it helps, since I am arthritic too, please let us know,
all the best
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Old 12-02-2006, 10:20 AM #4
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jc

my mom (she's 87) took mobic for arthritis. she had some reduction in pain but not enough to make it worthwhile. the only difference she noticed was that she didn't have the nausea she had with celebrex. but she said it didn't do any better than the celebrex. she quit taking it because it just didn't help.

hope you have god luck with it.

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Old 12-04-2006, 01:58 AM #5
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Hi Janet,

When doctors began prescribing Vioxx to RSD patients I stayed silent. I can't do that again.

In their frustrations in trying to help their patients (and to win against disease, which is their job), many doctors have resorted to trying almost anything, and they are risking serious harm to their patients when the desire to win becomes more important to reliance upon science.

RSD is not anything close to mobic or any other type of arthritis. The only known similarities between these disorders is the tiny amount of research into to the role of oxygen free radicals in both disorders; but OFRs have been identified in over 100 disorders, and at any rate, this drug is not useful as an antioxidant.

Relieving the pain of RSD may seem worth almost any risk, but it isn't; not when that risk involves unnecessarily dangerous side-effects and shows no potential for helping RSD. Many drugs physicians use in their "shotgun" approach to treating this disease fall into this category.

I will now ignite a minor fire-storm by adding ketamine to this list. I consider the research questionable; especially in the context of other so-called RSD research that claimed an efficacy that was not disproved soon enough to prevent further damage to patients. Schwartzmann's claims for "permanent relief" of RSD symptoms by surgical sympathectomy comes quickly to mind.

As you see by this post, I am still trying to do what I can in my fight against this disease. I won't promise I can continue, but if I can my next major post will explain why RSD is not, and cannot be, a neurological disorder. I realize I have never really explained this.

Meanwhile, although I am probably violating some sort of law, I urge you not to take this medication. It holds only risk and no potential at all for help.

I am letting many people down by not sharing all that I've learned about this disease, and no one who has read what I have written has any reason to pay any attention to what I say at this moment. but some of you have said that what you understand of what I've written seems to make sense; please take this into account when making a decision now.

Refusing a med may anger some doctors, and finding docs willing to write appropriate pain prescriptions is a real problem, but your doc should respect your questions about the safety and efficacy of any drug; and answer those questions honestly. He is not the one who will suffer the harm from dangerous side effects...Vic
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Old 12-04-2006, 10:57 AM #6
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Now that's the Vic I know and love. You are so intelligent and I have always admired you so much, and of course I have to say that I have always believed in you and anything you have told me.

Since beginning this med, which she prescribed actually because of the severe pain from the fibromyalgia, and arthritis that I do have, it has reduced my arthritis pain in my legs, but if it is more harmful than good, I sure don't need that. I do not want to take something just because my Dr prescribed it, when it has too many risk. I did read a website the other day and some of the side effects to this was pretty scarey, and I don't need any added issues.

Thank You Vic, and I am so proud to see your post.

I have missed you so much and I did try to phone you the other day, because some of the articles that you sent me years ago were lost due to my pc crashing and me not having anything saved.

Love Ya,
Janet
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