Hi Kelly,

Thank you so much for the answer back message. I'm so relieved you have the precautions while in the shower and your nice neighbor is a real blessing- to have the light 'coded message' and staying while you are in shower. That is so sweet of her. Thank you too for your pictures. No wonder you can't walk well. Your right foot, toes have really turned inwward and curling. I always read your message and enjoy hearing from you. It's wonderful to feel cared for and encouraged by so many fellow rsd friends. We know they really understand, even though our symptoms are not all identical. Take care of yourself and thank you again for sharing your pictures. Soft hugs, Loretta

Hi Jfymat and Welcome to Neurotalk,

That was such a kind and sweet message to Ali. All of us feel that way about Ali. It especially pains our hearts when a youth is effected by RSD. If I even start to feel sorry for myself, I think about the years I had of healthy life and Ali's health has been cut short yet she is full of courage and love for others in this situation. Will look forward to getting to know you better. I'm 60 years old and my husband is wonderful caring for me and helping around the house and grocery shopping etc. Our daughter is a big help too.Take care, Loretta Jewell