Hello MominPainRSD
1st I am sorry about your hubby, I hope he is going to be ok,
now that must be hard, for the both of you, being sick,

Just a bit of info, you might want to look in to,
Here in Mich it is law, that RSD is real, here is the law as it is here in Michigan
please look up your St, and see if there is a law on RSD, if so, everyone in the med field have to learn about it, and more, it is law,,, but its seem its been up to us to make sure they do that also, you can call the RSD foundations in CT, and ask them to send all the info to any hospital or Dr's you might want to see,, they will send it out for you, also do not forget about the
EMT's that is near you,(the EMT near me are learning about it) and so on, but look to see if RSD is Law is your St
if not, you sure can start looking in to that, if you want to, Even my own Lawyer did not know about this Law, when I found it, I sent it on to him
and that help my case,
sorry about getting off track here,

I think its going to be up to all of us RSDers to bring RSD out of the closets
no one is going to do that for us,

again I am so sorry to hear about your hubby, also,

Peace '


https://www.legislature.mi.gov/(S(uw...e=mcl-333-5141

That is TOO cool!! I did NOT know that. I will certainly look into it. I may be walking slowly, but by golly, I can still walk. I'll hand deliver all this info about RSD to every hospital, pain clinic, doctor's office, EMT, and PT if I have to.....SERIOUSLY!!

Oh.....you are too sweet to be concerned about hubby. Our circumstances are SO dire aside from health (cancer and RSD are almost just a drop in the bucket!!)......he lost his job a year ago and hasn't been able to find work in this economy, I cannot work due to RSD, we are about to lose everything (well....house and cars.....we get to keep all our stuff.....we just have nowhere to put it all!!), and I can't even afford treatment for my RSD anymore. That is part of why I'm asking these med questions. I can't afford to do trial and error at $20 a RX. I have a TON of Zanaflex and Flexeril......I hate for it to go to waste and have to buy a new med.....but I need ONE that will actually work. Thank you for your well wishes!! We just try to laugh as much as we can. I really appreciate this information. I may have a new mission in my immediate life!!!!

Hi Mom! : )

I am on Baclofen also.. 10mg 4 times a day. I am sleepy but I really don't have any other side effect from it. It helps me a lot! Before Baclofen, I had rolling spasms every single night when I went to bed.. They would last for an hour or more.. Since Baclofen I only have the spasms maybe once or twice a week instead of every night, so it is helping.

As Diana said, cold really sets off the pain and spasms.. If I get started shivering then it goes wild on me.. 58 degrees is cold where you are Diana..I
remember how hot it used to be there.

Wishing everyone a whole lot less pain..

Pauliana

OMG! I am so sorry that just makes me mad,,,,

there is so many story's that need to be told, and when you think you got it bad, just look what someone else is going though
I hope you have some place to go?

Peace

Yes.....I will say that when I get really cold (or tired) I find that I cannot warm up. I have to lay in the bed for hours with heating pads all over me to get warmed up. I really don't mind it, though......being from the South originally, I LOVE the cold in contrast to the incessant heat and humidity I grew up with. We can always put on more clothes.....we can only take so many off without being indecent (I will speak for myself at least) and scaring the neighborhood children and animals!!!

I had to chuckle when Diana wrote that too (about the high being in the fifties!! You know I love you Diana!!!). I think we're expecting negative zero lows tonight here. It was a balmy 20 degree high today!! I LOVE it!!!!

Warm wishes to all!!!

Here are cites for the Flexeril

Found at this link: http://www.rxlist.com/flexeril-drug.htm

This link also say you really shouldn't take it for more than 3 weeks. http://www.medicinenet.com/cyclobenz...al/article.htm

Found here: http://www.pdrhealth.com/drugs/rx/rx...&contentId=241

Those are all the ones I've found. I also have a PDR book here and it says the same thing in it too.

Hugs,

Karen

I have been on lots of muscle relaxants as I have REALLY bad Myoclonic spasms in my left leg which is where I have the RSD! My Pain Management Doctor and Neurologist both feel that the Myoclonic Spasms are a complication of the RSD and they have tried everything to get them under control and nothing has worked so far. The Intense Physical Therapy Program calmed the spasms down quite a lot however they are gradually returning at the moment unfortunately!!

The muscle relaxants that I have been on so far are:

Baclofen - I was put on this when I was first diagnosed with RSD - at that point I only had spasms in my toes. The Baclofen didn't work at all and my PT's felt it made me too floppy in the areas that didn't need to go floppy - I couldn't sit up etc.

Diazepam - I was put on this when I developed the Myoclonic Spasms and it didn't help at all and made me feel really sick!!

Kenadrin - This didn't work and made my pupils really dialated!

Propranolol - This didn't work and affected my Blood Pressure a lot (Propranolol is often used for people with High BP to try and lower it).

There are lots of others that I have been on also but I can't remember the names, sorry (RSD memory!)!!

Here's a link to the video on Youtube of my Myoclonic spasms in my leg:

http://www.youtube.com/watch?v=xIXakErNBpE
http://www.youtube.com/watch?v=qE_OwuilOew

I really hope you find something to help you soon as I know how awful the spasms can be! Just keep in mind though that everyone is different and what works for one person, might not work for another ... no two people are the same unfortunately when it comes to dealing with this illness!!

Take care and please keep us all updated when you can!

Pauliana,
Hey girl, Talk about a space cadet...I totally forgot you lived here before. I thought I had it all together but...the RSD, Men O Pause and Drugs....Well.... What can I say. I really space out a lot of stuff. LOL But truly, I can hardly wait for summer 120 in fine with me. I got some oxygen yesterday, the bones are cold and painful. I agree the cold seems to set off more spasms. Swelling has set in as well. My hands and fingers want to curl under, which is something I have been fighting for years. I'm on top of this constantly...what a lifetime job. Thanks for the pm...I'll be in touch. You take care. Di
Was there anything I was suppose to send you????