Reflex Sympathetic Dystrophy (RSD and CRPS) Reflex Sympathetic Dystrophy (Complex Regional Pain Syndromes Type I) and Causalgia (Complex Regional Pain Syndromes Type II)(RSD and CRPS)


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Old 02-04-2009, 05:25 PM #21
MominPainRSD MominPainRSD is offline
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Oh.....that is the saddest thing......poor little puppy missing his Mama!!! How did you get the bone out of his mouth??? Dogs are so funny!!!
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Old 02-04-2009, 05:29 PM #22
kelly6449ed
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Mominpain,
I know, my PM Dr is very upset about no one helping me, he keeps saying he has never seen a case like mine, and wants to know what my Lawyer is doing
to help me , not much, ,,,he has been a PM Dr for over 20 years, we just talk today, I can not longer go in to see him so we just talk via phone, he will not drop me, not even if no one is paying him, for over a year now, no bills, from him, he dose send it in to my Auto, they just turn it down,
and my Lawyer is just dose not understand ,,,, I am very upset, but what can I do,I called every lawyer in the book and no one will take it due to there is no money in it, that is all it comes down to, money, I was begging for help
from the med field, begging them, from St to St,
you know I said to my Lawyer, I feel like they are killing me, and I will not make it to are hearing, you know what he said, ya, I know

now ,we just talk today, and I ask him about what he thought of the tape I done at the IME Dr's visit, he wants me to type it all out for him word for word, I cant spell all that, then he said my best friend that went with me can do it!! this is getting so out of hand, I just do not know what to do know more, I can not fire him, and he knows it,
NO MORE !!
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Old 02-04-2009, 05:38 PM #23
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This just absolutely breaks my heart. This is just WRONG. NO ONE deserves to be treated like that. I wish there was SOMETHING I could do. Just know that I care and am always here for a shoulder to cry on or an ear to yell at. I really do understand your pain and frustration. I HATE that it all boils down to money. So much in life does, and it is just wrong. One thing I know......every one of those people are going to give an account to God for how they've treated you. They will not get away with anything in the end. You're in my prayers.....
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Old 02-04-2009, 05:49 PM #24
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Oh that just broke my heart when I seen though pic, the lady that helps me took them so I could see what he was like without me,

LOL oh the bones!! he gets them stuck all the time,
but one day, I could not get one out, my dad told me to take a towel and put it in his mouth, and that will hold it open so he can not bite down,
ya, well I did what he said and just kind of pulled it out, so for now on, he gets only biger bones or smaller ones, he likes the big ones best, I have a ton of pic of bones stuck in his mouth, LOL it only hurt him that one time,
but he loves them so much and I like giving him them they last longer,
you can buy them at the meat counter, and they are cheeped then dog bones, witch he gets them also, for his teeth,

he never leaves my side, he is right here now, he is only 9 moths old and big!
80lbs now,
from the start he was diff, use to walk under my W/C till he could not fit no more, then would pull me up the stars, I would hold on to his coller,
then when I fall I would grab it and I would say back back and he would back up, and help me get up, then when he would play tug of war, with me
he would just stand there, and not pull hard at all, with everyone else
look out! he will take your arm off,
then I could tell him to go and get something, like my sock he took off with
and he gets it, he is doing a lot of tricks, I am amazed so is everyone that see him doing all of this, he will put things right in my hands if I ask him to,
he will not bite down on me, like when he wants something,
he just comes up and opens his mouth and kind of gives me a little pull,
and takes me to where and what he wants, I tested him one day
just to see, I would go with him and then go in a diff, way, he would come right back and get me, I know he was going for his treats,
and he gets in the shower with me,,, so I have to lock him out,
he will not touch my food, I can have chips right next to him, and say ok you can have one, he takes one and will not try for more,

got to love him, well we talk all the time, and I cry on him he will not move when I am doing that,
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Pauliana (02-04-2009)
Old 02-04-2009, 05:57 PM #25
MominPainRSD MominPainRSD is offline
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That is SO sweet!!! I am so glad you have him. What an amazing little creature.....so intuitive to know to be so gentle with you. I'm glad he is such a help and support. I have two kitties (you see on my Avatar). The one on the left is Izzie and the one on the right is Penny. They follow me around like dogs and sleep with me (the white one thinks it is HER bed......she just lets me sleep here!!). She has to lay right up against me.....it is sweet but is hard when I can't get comfortable and have to toss and turn or when I feel hot. She doesn't seem to care.....even when I flop my legs on her in the middle of the night. I have a pet rat (yes, a rat!!! She's beautiful and all white.....a sweetie!!) and saltwater fish.....but I can't snuggle with them!!! Thanks for sharing your story!! That is precious!!!
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Old 02-04-2009, 06:38 PM #26
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Mominpain
Oh sweet, you just got to love them for making you feel better
oh ya Ozzy thinks my bed is his also, but now we are in a twin size hospital
bed and he is so big, I tried everything to get him off of here, but with no luck
but I don't think I could sleep without him also, so, he wins,
I use to have a pet rat, they are neat, smiles, and a bunny
but by far Ozzy is the best, of all the pets I ever had,
when we use to sleep in the big bed, he would get under the blankets and put his head on the pillow, one morning I look over at him, and with this funny grin on his face, and his tong hanging out, and he farts! its like having a man in my life again, sorry I hope I did not a-fend anyone, like the men on here,
oops sorry,
sometimes I think about getting a cat, but Ozzy would might hurt one
I am happy to hear you have pets that help you also, its funny how they can help us, but they do, I have talk with outers on here that have pets, and they all say the same, there is no love like with they baby's, and I know that they pick up on something is diff with us, no matter what kind of pets you have, smiles

thank you for all your help and understanding , and kind words
and I know there are all kinds of story's out there that are worse then mine,
so I have to think about that, that helps me fight harder,

Peace
Kelly
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Old 02-04-2009, 06:57 PM #27
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Dear Kelly,

I am so sorry to hear you have to go through this with these doctors. I can't imagine the stress that this must be causing you.

I think thier behaviour is downright unethical!

Is there a professional association in your state that you can launch a formal complaint against this doctor?

You might want to run this by your lawyer but it is most important that you get the right treatment and that you are treated with respect.

MsL
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Old 02-04-2009, 07:14 PM #28
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thank you MsL

My Lawyer is not helping much, I am left to most of the work for him
like him asking me to type word for word, that I taped os
my IME Dr, and he wants me to go see more Dr's on my own now, and he knows my medicare will not cover it,

I have thought about putting in just that, what you are talking about,
but pick one? there has been so many, I am just not up to that now,
no more fights, just need treatment, there is an RSD Dr, here, he is the one that did DX me, and he is very nice, but he can not see me till after my case is done, he has to be paid also, and I am not able to pay out of pocket no more
I use up all of my savings so I could just live in my home, alone,
my mom and dad can not help, they are both getting up there where they need help also,
and I am not going in to a nursing home,,, that has been talk about,:mad :
I would lose my home to them, and there is no way I am letting that happen
if I was to be let out of there, I would not have my home no more
the St run nursing homes, well if you have asset they make you sign them over to them, 1st, I use to work in them, and I use to see them with undies of someone else on, and they are just really run bad,
even the ER Dr said last week I should not be living alone,
I am thinking someone is going to make a report and take me in,
my dad and mom was there and said that to the Dr there, she should not be alone, its not save for her (me)
I was so mad, that he said that, knowing what I know they can do
but he did not know, so I change what we where talking about FAST!
hoping he did not catch on,
I told that Dr, after I found out that it was just a bad flair up that I would not come back in, next time ,, and just ride it out ,,but he did say to come back, but I am not going just because of knowing what I know about how they can make you go in to one, like they did my Grandma,
I think this out, before acting, at least I try to, smiles

thank you
peace
Kelly '
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Old 02-04-2009, 07:49 PM #29
MominPainRSD MominPainRSD is offline
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I must say......offensive or not.....this totally cracked me up!! The, uh, emissions are NOT one of the more endearing things about having a man in my life (smile!!). I guess I could threaten my hubby and tell him he'd better watch out or I'll just get a dog!!

Regarding "my" rat......she WAS my youngest son's class rat......I entered a raffle at the end of the school year to "get" to take her home (upon his begging and pleading) thinking to myself, "what are the odds that he'll actually win??". Well...there were two rats and two entries......so the rat came home on the last day of school.

She is the sweetest little thing.....she is SO friendly and loving.....they are meticulously clean animals (except when she gets rowdy and tosses her shredded paper out of the cage). I have absolutely fallen in love with her. She actually just had to have emergency surgery last week. I thought we were about to lose her......she had a uterine tumor.......I was heartbroken......they took wonderful care of her (we are fortunate to have an exotic pets vet in town), kept her on IV fluids and pain meds over the weekend, and is safely back home with me now. The vet wants her to "not run around too much" while she's recovering. I'm like......ok.....she's a rat......how am I going to keep her from running around???

Anyway......I have such a heart for ALL of God's creatures. I got my kitties from the pound as adults. I would have taken them all home if I could have!! There were SO many unwanted cats. I just love saving animals and giving them a good life.

I'm glad to know that you have your little Ozzy. He is adorable and clearly loves you so much!!! It is the little things in life that keeps us going, huh??? I hope this day ended with a smile for you!!!
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Old 02-04-2009, 08:01 PM #30
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OMG you are killing me,!!!!!!!!!!!!

you won your Rat, LOL I guess that would be one that no one would of wanted to win, but I am so happy your family won, or, someone might not have tried to save it, like you did, wow, ya how do you stop rat from runny, lol a very small cage?
what about your cats? and the rats? they get along?

I am not joking I am in tears (of joy)over your posting here!
thank you I needed that, I hope everyone that reads this finds it funny
as we do, LOL



thank you mominpain,
hugs
Kelly
PS my baby,, well she not a baby no more, she is going to be a Vet, so we love all God's creatures also, maybe not spiders or bees
I do love snakes,
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